I'm
finally back home after my 2 days stay with my Grandma and Poppy's. My
first appointment with my new primary care physician went extremely
well. He knew what Crohn's disease is and even what he had to keep an eye
on. And he even said he would be working together with my GI doctor
because all my health problems that he has to manage are side effects
due to Crohn's disease and or side effects from the
medications I'm on due to Crohn's. I was at the doctor's office for 3
hours!!! I never had a doctor take this much time with me in my entire
life. I'm not the kind of patient you can just see for 10-15 minutes
and then rush me out the door. The nurses and office staff were shocked
at how sick i am being so young, they were clearly affected let's just
put it that way.
The doctor talked with me for 30 minutes or
longer reviewing my monstrous pile of medical records that I have
accumulated in just 4 years. He was overwhelmed to say the least with
all the paper work on me. But he has a plan and is going to be running
regular blood work on me every 3-6 months as needed to check my levels
that the GI doctor won't normally check. So I get to have double the
blood work done every few months between the 2 doctors, but that is ok,
I'm so use to it it doesn't bother me. Thank God I was never scared of
needles or blood.
So the plan right now is to keep me on the
same meds my old primary care doctor had me on and we are waiting for
the blood work results to see if he can change my heart/blood pressure
meds and if I need to be on any prescription strength vitamins/minerals
due to malnutrition/malabsorption because of Crohn's.
Yeah
sometimes I actually get malnourished even though I'm over weight. The
weight is due to the steroids not because I eat too much. I don't eat
enough and or enough of the right kinds of food because my body rejects
it. I told a lady yesterday, that if I didn't have to eat I wouldn't
because food=pain and the longer I can go without eating the less pain i
am in. The funny thing is, every time i go to the doctor since i was
first put on steroids 2 years ago i can never lose this weight but i
never gain anymore which i am so thankful for, but even though the
scales say no weight loss all my jeans are too big for me now, i'll take
losing the inches at least i'm losing something. The doctors don't get
on me too much about my weight because they know i'm not doing it to
myself, they know it's the meds they have prescribed. And they clearly
see i'm not gaining anymore so that to them is fantastic that i have not
gained a pound it nearly 3 years.
So, to see how many inches I have lost on my waist, I put on a pair of old jeans I have not been able to fit into in 3 years since I was first put on steroids. And amazingly, they fit perfectly!!! I now have 6 pairs of pant/capris that are too big for me and have to be put back in storage....hopefully forever!!
And for the next week I am
to keep track of my heart rate because I am not on anything for it and
my heart rate goes sky high a lot due to Crohn's pain and it feels like
my chest is going to explode sometimes. And in a week call him back
with the results and if my heart rate is still a problem then he will
put me back on medication for that.
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