Miranda's Music


Listen To Miranda's and her husband Jeremy's Music and Download Many of the songs they have recorded over the years

Tuesday, December 17, 2013

Trusting God To Provide Part 2

As in my previous post I said I had some other things to share.

Part 2 is about what happened at my appointment with the colon/rectal surgeon appointment I had nearly a month ago.

The surgeon could not even do an examination of my bottom because he discovered I have 2 fissures in my rectum. Fissures are tears or open wounds on the colon/rectum and are extremely painful. And in my condition they are not going to get better says my gi doctor so I am to call the surgeon back after Christmas and make another appointment for another examination, but this time the gi doc wants the surgeon to put me under anesthesia so he can do a full examination and see what all is going on and if I may need surgery to heal these fissures and hemorrhoids.

My body is literally starting to fall apart due to have diarrhea and vomiting every day for the past 6 years straight.

The surgeon also said he believes I have another disease/condition besides crohns disease that is causing such extreme symptoms and problems. But they really don't know what that disease/condition is.

So we just have to keep leaning on The Lord and have faith that he will provide. Provide the doctors with the knowledge and answers to help me.

So now I have got everything out and I feel better for writing it and not keeping all this bottled up inside and sitting here worrying and not talking about it.

One day at a time is how I deal with everything. Make it through today and hope for a better tomorrow.

Sunday, December 15, 2013

Trusting God To Provide

Since my last update just over a month ago, we've had some new developments.

First, I got a letter from Medicare/govt. Run health insurance that I no longer qualify for any kind of help to pay for the crohn's medication I'm currently on, because my husband now has a job since graduating from college. So to stay on my current medication I need to come up with nearly 700 dollars every 2 months to pay for the medication, and if I would go on a different medication it will be even more expensive and I still will not get any help. In the past year to help pay for the nearly 700 dollar copay every 2 months I got help through my health insurance and also a non profit organization. But both go by how much your income is and they also don't take into effect how many bills you have to pay each month either, and due to this life long disease we are so much in debt to medical bills, even with insurance that we have no money to save or to even help pay on the copay for the crohn's medication. 

I talked to my doctor and they have done everything they can to get me help and literally between the doctors office and me making calls myself to numerous charity organizations and even to the crohn's and colitis foundation locally and nationally, there is no help for me. And I also found out that there are many people in my same situation, they have health insurance but it doesn't cover enough to make the medications we desperately need affordable to us.

So as of January first I will no longer be on any medication to fight this disease. And the only medication that is affordable to me is a Med that I have already tried and hasn't worked, but it is the only thing we have to try if my health starts to deteriorate more than what it already has. We have to pray that some way some how the govt. Will change their ruling on giving people assistance for these extremely expensive meds and give people like me help. Pray that God heals me, and that doctors and scientists find a cure for this disease. Because no matter how rich you are no one can afford to pay out this much for medication for the rest of their lives.

There is also more bad news but I will save that for another day. It may seem everything is out of control, but I know God has it all under control and he will make a way for me and take care of me.