Miranda's Music


Listen To Miranda's and her husband Jeremy's Music and Download Many of the songs they have recorded over the years

Tuesday, November 5, 2013

I'm Still Here And I'm Still Fighting

It's been just over a month since my last post.  So it's time to make a new update. 

Made it through Halloween without wanting to strangle someone with all the candy and food around that I can't eat. 

And to combat the depression that sometimes can come with celebrating Holidays that I can't partake in Jeremy and I had a Wizard Of Oz party last month!  We had family come over and had a wonderful time watching the 75th Anniversary Edition of the Wizard Of Oz along with a few Halloween show favorites like "It's The Great Pumpkin Charlie Brown" And "Garfield's Halloween Adventure"
Me In my Oswald The Lucky Rabbit Hat At The Party

A Big thanks to Jeremy for being the best host EVER. I was able to just sit and not stress or strain my body anymore than it was and I was able to enjoy having my family with me in my home all together for the first time. 

And Thanks To the new medicine the doctor put me on to help with my stomach spasms and intestinal spasms.  I have not been throwing up as much.  Instead of throwing up every other day.  I'm throwing up at the most 2 times for the whole week!!! And I don't dry heave like I use to constantly, I do that a few times a week now instead of daily.  But my other symptoms are still not under control, the daily running to the bathroom 6-10 times a day has not let up, the severe intestinal pains that double me over and lay me up in bed, and there are still days during the week I'm stuck in bed either due to side effects of the medicines or because of Crohn's Disease its self. 

Yesterday I had to break down and actually take a pain pill for the first time in over 4 months! For some reason that even the doctors don't know I continue to have severe intestinal pains, and yesterday was the worst I've had in 4 months.  For 24 hours I was in Constant out of control pain with no relief.  And by yesterday morning I was at the end of myself.  So I took to facebook and asked my friends to pray for me that God would ease my pain.  I spent majority of the day in bed in a fetal position, taking pain pills, and watching cartoons, because we all know watching cartoons when you're really sick always helps, or so I think. 

My friends started writing that they were praying for me and I truly believe in the power of prayer.  Because whenever I ask people to pray for me that God ease my suffering.  God always listens and my pain did subside enough to where it was bearable, and when Jeremy came home at 7p.m. last night from work I was able to be up out of bed and enjoy the evening with him.  And my pain level was manageable that I went to bed last night and slept the whole night!

And the only problem this morning was I threw up, so I took some medicine to stop the nausea and spasms and haven't had too bad a day I must say.  Even though another symptom decided to pop up this afternoon.  I don't know if it's a side effect from the meds or the disease. But every so often My hands and feet will break out in tiny blisters and after they pop my hands and feet look like I've had a bad sunburn because my skin starts to peel.  It doesn't really hurt it's just weird, then it goes away for a few months and then randomly it will pop up again.  Just like the boils/sores that have been popping up on my torso for over 3 years.  I use aloe vera to treat with and it helps heal it up. 

In 2 weeks from today I will be at Ohio State University East Hospital seeing a surgeon about what needs to be done about these hemorrhoids that this disease has caused and whether I need surgery or treatment to help them.  I'm nervous yes because no one wants to have to go through surgery no matter how minor or severe.  But my good friend and second Mom Dawn is taking me and she always is such a comfort.

But right now unlike the past 2 years I do not have any doctor's appointments until after the holidays and I really hope it stays that way.  And that this body will allow me to spend Thanksgiving and Christmas with my family.  That's what I want for Christmas to be well enough to spend it with my family, oh and for a Cure for Crohn's Disease. 

I guess that is it for now, I will give another update once I've seen the surgeon and we get some more answers as to what we are doing next.  God Bless