Miranda's Music


Listen To Miranda's and her husband Jeremy's Music and Download Many of the songs they have recorded over the years

Wednesday, December 28, 2011

Miranda's Christmas In Pictures 2011



Miranda in examining room at Gastro dr. office as you can see she was in A LOT of pain. Gastro Dr. took one look at her and started ordering a special CT Scan, blood work, urine tests, stool culture etc. and sent us across the street to Mount Carmel To have all of this done the same day.






Miranda Christmas Eve day smiling through the pain. The Couch became her little haven for Christmas Eve and Christmas Day as family and friends came to visit and exchange gifts
.
Miranda Christmas Day. She was still in pain but not as much as the 23rd and the 24th
She is smiling because a friend donated nearly 15 pounds of yarn Christmas Eve, for her ministry project "The Smitten Mitten Expedition" Where she crochet's and knits hats and scarves for the homeless in our area. Miranda was trying out her new Knitting Looms for the first time and was so excited at how easy they were to use, and it helped her work through the pain that the Crohn's seems to constantly have her in.

Please Continue to pray for Miranda and the Doctor's that some how some way they can find a way to put the Crohn's into remission and that Next Christmas Miranda will be able for the first time in 4 years be able to spend it with her family and travel to see them.---Jeremy Caverley

Monday, December 19, 2011

In the Altar of Affliction: How God Uses Me While I am Sick in Pain-Top 10 List

1. I can crochet items for homeless people.

2. Write inspiring cards to people.

3. Pray

4. Write letters of encouragement.

5. Play piano.

5. Talk on the phone to people and encourage them.

7. Make cookies and food for people as I can't eat much of anything anymore.

8. Write poetry and short stories.

9. Write funny puppet skits and live action dramas to teach about Jesus.

10. Write songs for the Lord

TOP 10 Things That I Am Thankful For

1. That my house is clean and I have a husband who helps keep it that way when I'm not able to.

2. I was able to take a shower and clean myself up.

3. I am able to spend quality time with my husband as limited as we are in what we can do.

4. That I'm able to pray for people who are in need.

5. That I had a small bowel movement, and it helped ease my pain in my abdomen.

6. My grandma offered to do my laundry.

7. That Jeremy and I have enough money to make it on our own.

8. Jeremy and I have been together 5 years and the future holds many more.

9. My Jeremy cries and is a real man to love me that much.

10. I still have my Poppy because Papaw's gone.

Sunday, December 18, 2011

Condition Critical: Our Hands Are Tied

Written by Husband Jeremy Caverley

This last week has been very trying as we have gone without sleep as so many things have happened.

It got really bad these last 2 days as she has collapsed in pain twice now, and was up for over 24hrs in pain several days a week.

She has only been able to keep down 2 or 3 Ensure and a sandwich or so. Making the grand total of calories a day about 800 to 1000 or less.

Every day she is either in bed or her chair resting, trying to deal with an upset gastro tract and all is so difficult.

We have been keeping track of everything for the past two weeks. From calling the doctor, medicine, pain, fever, bathroom visits, etc.

The doctor in Columbus isn't available to see her as often as needed. They told us to find a new specialist that is closer!

Along with 2 changes in local doctors and this also being the 2nd gastro specialist to begin with, it is becoming a common problem for us.

We are running out of options to find a closer specialist. Because in reality there isn't. The only place closer is another in Columbus, Cincinnati, or Cleveland, along with out of state!

So we are on the search for a new gastro specialist if her appointment this Friday doesn't amount to anything and if the local doctor can't help us either.

Many have told us to try an ER, but they have consistently given us a wrong diagnosis and told us to just do a follow up with the doctor the next day and just gave a shot for the pain.

As of right now our hands are tied as both the local doctor says to call the specialist and the specialist says find a local doctor....

LORD please give us the right sign....which way to go....

Sunday, December 4, 2011

UCVlog: Inflammatory Bowel Disease PSA

It's Crohn's & Colitis Awareness Week!

Ask Your Legislator to Join the Crohn's & Colitis Caucus!



December 1st-7th is Crohn's & Colitis Awareness Week, use this opportunity to ask your legislator to join the Crohn's & Colitis Caucus and help raise awareness for these devastating diseases. Congressmen Ander Crenshaw (R-FL) and Jesse L. Jackson, Jr. (D-IL) launched the Congressional Crohn's and Colitis Caucus in March 2011.

Senate Supports Crohn's and Colitis Awareness

Wednesday, November 30, 2011

Thanksgiving Day Wish Come True

Despite all the terrible things going on with my health some good things have happened over the past few weeks since I last posted.

The day after my last post Saturday Nov. 19th with the help from my Grandparents, Dad, his fiance' and my husband Jeremy. I was able to go to the event "One Night Without A Home" that was held in our town of Chillicothe Ohio to raise awareness about homelessness.

We had a booth for JMC Ministries and gave away lots of stuff about homelessness. I got to talk to many people about the "Smitten Mitten Expedition" where I make hats and scarves and fleece baby blankets with the help of my friend Dawn. I shared about my diagnosis with Crohn's and how through this disease I started making the hats and scarves to try and still make a difference in my community despite the fact I'm home and bed bound many days.

My husband Jeremy got to speak at the event about how he was homeless for 2 years in Houston Texas when he was just 19 yrs old. And through the help of many was able to make to where he is today.


We also held a raffle at our booth and raffled off 18 books about homelessness written by our good friend Dr. Jeremy Reynalds who is the founder of the largest family homeless shelter in New Mexico. We raised over $83.00 to help the local homeless shelter in Chillicothe Ohio.

The only sad thing about the entire event was that I really paid for it the next day. I got even more sick despite the weather being nice and was down sick with the chest cold for over a week and due to my immune system being so shot I'm still not over the cold and because I'm still on my antibiotic for the Cdiff I can't take anything to get rid of it.

I was suppose to go to my Gastro Dr. appointment the day before Thanksgiving day, but because I was so sick and I'm so prone to catching any virus that someone may have in an inclosed space like the dr.'s office my Doctor Cancelled my appointment to keep me safe and try to give me a chance to get better.

So, with that news we were able to breathe a little easier and I got to stay and bed and rest the hold day before thanksgiving. And Thanksgiving day even though I was still sick my Grandma told Jeremy to bring me over to have Thanksgiving with them since it was only going to be just her, grandpa, and my Dad there. The only thing that went good on Thanksgiving was the fact that everything I ate from the Turkey to the mashed potatoes and noodles did NOT mess up my Crohn's! I'm thankful I got one day to enjoy without abdominal pain.

But since the Gastro Dr. cancelled my appointment to allow me to get better, they rescheduled my appointment for Dec 23rd. As of right now I don't know what they are going to do other than talk about how I'm doing and see if they need to try something new to help my Crohn's get into remission faster.

As of today though I'm still fighting this cold and though it has gone out of my chest I still keep sneezing, coughing, achy and running a low grade fever nearly every night for a few hours. I can't take any antibiotic or stuff for it because I'm still on the antibiotic to get rid of the Cdiff until at least Friday. And I'm sure after that the Dr. will want to do another test to see if the Cdiff is gone or not. Not knowing which is causing it between the Cdiff and the Crohn's but I've been having severe abdominal pains over the past 3 days the other night Jeremy and I were literally up for over 24 hours because I was in so much pain and no amount of pain meds would help it. So by 8a.m. Tuesday Morning we were exhausted and Finally the abdominal and stomach pains eased up enough where I was able to sleep until 4p.m.

Some people are saying that I'm hurting because of my diet....Well I hate to them, but they are wrong. How can it be my diet when most days I'm living on Ensure drinks, and eating either boiled or grilled chicken, ramen noodles and toast and crackers because I can't hold anything else down? Even my family is starting to believe that it doesn't matter what I eat or not eat between the antibiotics reeking havoc on my stomach and intestines and the Crohn's Disease reeking havoc as well. I'm in a lose lose situation until the medications start to really work.

There are days like today I can't make it through on my own and I have to just pray and ask God to carry me through today and hope and pray tomorrow will be better.

Friday, November 18, 2011

What It Means To Be Broken

This week has honestly been the worst I've endured yet fighting Crohn's and today it got even worse.

Since last week I have been fighting to get new medication for my Crohn's Disease because, the medication "Lialda" I was on my prescription drug plan is refusing to cover it and so forced my Dr. to switch me to what is called "Asacol". I got this after a week and 2 days of fighting between the pharmacy, the doctors office and the prescription drug plan company. And That's just one fight.

In the midst of fighting to get the medication, I was to have a stool culture done to check and see if I have any kind of infection in my stool because where I contracted Cdiff 2 months ago. Well we had to fight 3 days to get the fax sent to the hospital lab we use. Because the dr.'s secretary was sending it to the wrong lab.

Then today I wake up and I am coughing up infection out of my chest. So now I've caught the beginning of an upper respiratory infection/chest cold. So I'm in bed all day today running a fever, aching all over, taking mucinex D to try and cough the infection out of my chest before I get too bad. I'm thinking about calling the doctor to make an appointment to get medication to get rid of this infection. Because my immune system is so shot and I'm malnourished from not being able to eat good nutritious foods because of the Crohn's Disease and I don't see any other way I'm going to get rid of it.

This evening around 3:00p.m. everything came crashing down on me and my husband.Less than 24 hours after turning in my Stool Sample for Testing, the Gastro Dr.'s office called. I knew something wasn't right because the person who called was actually another Dr. that works in the same office as my Dr. when normally it is the Dr.'s assistant who makes these calls.

The Dr. tells me "Mrs. Caverley, your stool culture came back and I have bad news. You have Cdiff again. We are calling you in another round of antibiotics but this time instead of being on them for 1 week you will be on them for 2 weeks and taking these pills 4 times a day."

That's when i started to cry on the phone and apologized to the Dr. for crying but told him that why I'm crying is because i woke up this morning with what seems to be an upper respiratory infection, and now I'm being told I also have Cdiff and I'm still fighting to get my Crohn's Disease into remission on top of it all.

He felt so bad for me and tried to console me on the phone. But honestly there really isn't anything anyone can do. Crohn's is also an auto immune deficiency disease and so I am more susceptible to getting all kinds of infections as well as any kind of communicable diseases like the flu, colds, STAPH, MRSA etc.

We have been told to look into buying surgical masks for me to wear when I have to go out in public to the stores, hospitals, dr. offices etc. because if I don't I might keep getting sick constantly. And that makes me feel really bad because I know if people see me wearing one of those masks they're going to think I'm capable of giving them something which in reality is the opposite. I'm trying to keep "them" from giving me whatever they have. Just one more thing to make me feel like a FREAK!

To try and put what I'm going through into words is so hard because honestly you can't grasp the enormity of the situation unless you are sitting here with me hearing me say it to you. As someone told me once a few weeks ago when they called. They said, "When I read your posts and blogs I didn't grasp the severity of your situation until I heard you tell it over the phone.

I guess it's just one of those things you have to experience it to understand it.

So no happy, inspiring things to share today because I'm truly broken and my faith is actually wavering. I keep asking God WHY!!!!!! Why do you keep allowing me to suffer more and more when so many are lifting me up in prayer to either be healed or have my suffering decreased so that it is more bearable. I myself have reverted to one line prayers like "God help me to get through this day." "God ease the pain so I can eat and not be malnourished." Those kinds of prayers I've given up on the prayer of healing because I prayed that prayer for 4 years and there has been no healing. So I have accepted that God is not going to heal me and for some reason wants me to go through this. I don't know anymore.............

Sunday, November 13, 2011

Trying To Make A Difference In The World While Fighting Crohn's

It has been over 2 weeks since I last shared anything, and with it being 6:51 a.m. and I've been up all night in severe pain again from the Crohn's I thought I would write.

This coming Thursday was to be the end of me taking the Steroid to help put my Crohn's disease into remission. Sadly I will Not be going off the steroid because I am still very sick with the Crohn's and it hasn't gone into remission.

I talked to my Gastro Dr. last Monday and they scheduled more blood work to be done, to check my levels and see how bad the inflammation and infection still is and how high of a dosage of the Steroids I should be on. I went to have the blood work done on Wednesday, then Nov. 23rd the day before Thanksgiving I have to go back up to Columbus for an appointment with my Gastro dr. about the results from the blood work and possibly see what other medications he wants to try to get my Crohn's into remission.

Sadly though if I continue to get infections like the urinery trac infections I've been fighting along with the reoccurring outbreaks of the sores and have to keep being put on antibiotics I will not get my Crohn's into remission. Because every time I have to be on antibiotics it flares up my Crohn's worse.

As soon as we can get some of my current medical bills paid off, I'm going to be referred to a dermatologist about my reoccurring outbreaks with the sores and see if there is a different option out there to treat them other than keep putting me on antibiotics. Like perhaps a topical medication of some kind that would heal them.

Next Saturday Nov. 19th Jeremy and I are participating in the event "One Night Without A Home" that is happening in our town of Chillicothe Ohio to raise awareness about homelessness. Jeremy has been on committee over this event and we are even going to have a table for JMC Ministries! We will be handing out FREE brochures about our ministry, audio cd's of our interviews with 2 homeless shelters one right here in Chillicothe that just opened up a month ago called Daughter's of Ruth, and the other interview is with Jeremy Reynalds the founder of Joy Junction the largest family homeless shelter in all of New Mexico. We will have 15 copies of each interview to give away.

We will also have 20 FREE copies of JMC Ministries (Jeremy Caverley's) essay he wrote for is English Class in College about his experience being homeless for 2 years in Texas due to domestic violence at home and the death of his mother.

Along with all this we will have brochures about JMC Ministries and what we are doing to "fullfill the great commission" And lastly we will be raffling off 18 books written by Jeremy Reynalds of Joy Junction about homelessness. All the proceeds of the raffle will go to the homeless shelters that will be present at the "One Night Without A Home" event.

This event is a great opportunity for Jeremy and I to help raise awareness about homelessness and to not just share JMC Ministries experience with homelessness but others as well and how we all can make a difference even if we have a debilitating, incurable disease like Crohn's.

Because this week I went to Daughter's of Ruth homeless shelter here in chillicothe and a Women's domestic abuse/homeless shelter in Circleville along with my Friend Dawn and we gave away all together 10 fleece baby blankets Dawn had made, and over 20 sets of hats and scarves that I had made. for our Smitten Mitten Expedition as we call it to help keep homeless warm for the winter. This was the 2nd year Dawn and I had done this and we had twice as many items this year compared to last year.

I am praying desperately that God will grant me a good day next Saturday on the 19th to be able to go to this "One Night Without A Home" event so i can share my story and also try and get more people to get involved with the "Smitten Mitten Expedition" and either help make items or buy items like mittens or gloves. Or to want to donate yarn and fleece so Dawn and I can continue to make more items for the homeless. Because every hat and scarf I have made over 2 years has been made with yarn that was 100% donated! I have not had to buy one roll of yarn thanks to generous donations from people in my community.

So as you can tell it is my greatest desire to be well even if it only for that day so I can go to this event. Even if I have to trade being well for he Holidays to go to this event I pray God grants me this pray and desire because I want the world to see how God can still use a person who is home bound and bed bound most of the time and suffering with an incurable disease, to still make a difference in the world we live.

Friday, October 28, 2011

Feeling Like Job In The Bible When He Had The Painful Sores On His Body



Yeah this is how I feel most mornings. Thought I would share this gross yet funny pic since Halloween is right around the corner.

That past few days have been another fight. Sunday October 23rd I woke up with a horrible pain in my neck. I went to the bathroom looked in the mirror and there at the base of my neck was this large sore!

It was hot to the touch as if it had a fever in it and very red and infected. So the next morning on Monday I called the doctor right a way to make an appointment. Because I've had sores like this popping up on my body for 2 years now every 2-6 months and the only way to get rid of them is to go to the doctor and get put on an antibiotic.

I make my appointment to my family Doctor and he takes one look at this horrible sore on my neck and tells me, that this one has him worried. Because I'd never gotten one on my neck before and there are lots of complications that can arise with a sore like this on the neck. He said he was happy that I came in right a way to have it treated, because if not it could have turned to something really bad in just a couple of days. So, he puts me on another round of antibiotics, and prescribes me also a antibiotic cream to put on the sore and other sores that might pop up to heal them. He also took a culture of it, which came back negative for STAPH or anything which is good but doesn't really explain why i keep getting these sores.

I'm on the antibiotic until the middle of next week, and already it is causing problems with my Crohn's. As all antibiotics do. Last night was the worst.......Literally Jeremy and I got 0 hours of sleep, even after I maxed out my pain meds I would dose off for a few minutes and then wake up with horrible intestinal and stomach pains. By the time the sun was coming up this morning and it was going on 8 a.m. I just broke down and cried. Because of no sleep, pain, and most of all it was time to take another round of the antibiotic. Which in turn repeats the vicious cycle.

My Gastro Dr. thinks I need to be referred to a dermatologist because neither him nor my family dr. know why I keep getting these horrible sores all over my body. However, if you look up symptoms/side effects of Crohn's disease it says that Crohn's can cause painful large sores on the body and even inside the body of a person with the disease. But for some reason when I tell the doctors this when they ask me why I think I keep getting these sores and I tell them I think it's because of the Crohn's they just look at me with like they aren't sure. Don't get me wrong I love my doctors, it's just I am really tired of having to take antibiotics every 2-6 months to fight these nasty sores. I also would like to know why I keep getting them, but it seems there are more questions than answers right now.

So it looks as if I'm going to be going to a dermatologist in the very near future. Which means more tests to be run and more bills to have to pay. Oh Joy!

Along with all this I have another fight with Medicare! I just received yesterday the bill for my Gastro Emptying Scan I had done over a month ago at Mount Carmel West Hospital, and Medicare is refusing to pay anything on this bill! Now Monday I have to call Medicare and try to talk to them and see why they won't pay anything and are leaving me with a $115.00 bill to pay. I have my suspicions as to why and it has to do with the Oh Great Adena Hospital that I talked about in my last blog about how they have been billing medicare for bills they shouldn't be.

The only good news this week I have so far is that I am now on A prescription strength generic version on Prevacid to help with the Damage in my esophagus. it is affordable and cheaper than buying the over the counter version of Prevacid.

I did go to my Grandparents and spent the night with them on Tuesday to give poor Jeremy a break so that he could get some much needed rest. Taking care of me day n and day out is very tough for anyone, especially when you sleep in the same bed with them and they are crying and whimpering in pain in their sleep waking you up. I had not been to my Grandparents in over a month from being so sick. It was great to just have a change of scenery and talk to my Grandma and my Poppy. It is so hard on them to watch me struggle and fight this disease, especially my Grandma because she is the type of person who wants everyone to be happy. And it's clear that I'm not happy most days especially a day like today. She's told me "I've prayed some nights when I know you are in so much pain, that God give me your pain. I'm old and I have been through more than you and I can handle this better than you can."

Sadly she is not the only one who has prayed this prayer. My Jeremy at times has laid next to me holding me and stroking my hair as I cry out in pain. Yelling, "God GIVE ME HER PAIN PLEASE TAKE IT FROM HER AND GIVE HER A BREAK FROM THIS! I CAN HANDLE THE PAIN GIVE IT TO ME!

But for some reason God chooses Not to take my pain away and I have to go through it even if it lasts hours or days on end.

Friday, October 21, 2011

Having To Fight Every Inch Of The Way

The past few days have been really rough.

First After suffering through for nearly 5 days with severe abdomen and stomach pains from the upper endoscopy, the pains have finally stopped. That was the worst pain I've felt in over 4 months.

Monday was literally the worst day. I was on the phone 5 times with the Gastro Clinic about my Crohn's Med's. Because when we went to the pharmacy they told us the Entocort (steroid to treat crohn's disease) was going to cost me $385.00 with my prescription drug plan. We were FREAKING OUT! So we called the gastro clinic, and they got busy calling the pharmacy asking why the medicine is costing this much even with the generic brand?

Then while dealing with this the mail comes and I get another medical bill that I'm NOT suppose to be getting, from the worst hospital in my opinion in the entire south central Ohio area "Adena" I don't even know why they have a billing department. Here is why I ask this question....

I go to Adena to have a test done or in this instance I went to the ER. I wait sometimes up to 3 months before I get a bill. The hospital is located in Chillicothe Ohio, but the bill comes from Michigan! Then when you are to mail the bill back and make your payment to "Adena" in chillicothe Ohio you mail it NOt to Chillicothe Or To Michigan where the bill came from, NO you mail back to Cleveland Ohio! However, when you have a complaint like we always do because we are getting bills from Michigan that we aren't suppose to be getting or we are getting double bills and they may just be double billing Medicare and screwing them over too. We have to call the phone number listed on the bill. The phone number is to Chillicothe Ohio Adean Hospital, not Michigan where the bill came from. So then you get the opportunity to talk to people who have no idea why we are getting the bills we are getting and they have to then go into their billing department computers that seem to be in Chillicothe Ohio but are being printed in Michigan and then processed in Cleveland Ohio to try and get this all fixed!

So upon receiving a bill I'm not suppose to and now reading the above story that we go through nearly every month. And dealing with possibly having to pay $385.00 for one prescription you know I'm freaking out completely!

At the same time all this is going on, my Friend Dawn comes over to try and cheer me up by giving me 2 Jeremy Camp T-shirts her and Gary bought for Jeremy and I at the Concert on Sunday that we had to miss because of the Crohn's acting up. I'm so thankful she was there for a short time because she saw what I was going through and I was having to deal with it all on my own because Jeremy was in class.

So after 5 phone calls from the Gastro clinic they finally some how some way got the Entocort prescription down to $85.00 from $385.00. The lady from the Gastro clinic even said she doesn't understand what the people at my pharmacy were doing and how they got the price of $385.00 for that prescription.

I can work with $85.00 because we still don't know how long I'm going to have to be on this medicine before the Crohn's goes into remission and this prescription will last me over 3 months.

Everything got worked out after nearly 8 hours of fighting and my stress level finally started to go back to normal.

But let me vent a little more about "Adena" Hosptial.......

So after reading all that we go through nearly monthly just to get a bill from them, oh it's not over.

This happened about 4 months ago....
One month when we mailed our bill to them, they say they never received it and without warning a month later when our next bill was do instead of a bill saying they didn't receive the previous months bill, we receive a letter saying they have turned us over to a collection agency! My bill for this hospital is over 10,000 dollars and now that they have turned us over to collections they have added on over 2,000 dollars of interest!

My husband Jeremy was on the phone fighting this for nearly an hour. First off we weren't receiving a bill every month from Adena to pay our monthly payment sometimes we wouldn't get a bill for 2 months and then we'd get one double billing us because they didn't send us a bill every month. Then there was the other time we didn't get a bill for over 3 months and then we called and told them about it now mind you we are calling Chillicothe Ohio the bill is being sent from Michigan. So they say they will send a bill out right a way to us so we can pay.

Now that we are dealing with them turning us over to collections because some how the bill that was sent from Michigan and then we mailed to Cleveland Ohio didn't make it and got lost some how. My husband brings this up and how their billing department is completely a mess and this isn't our fault and we shouldn't be turned over to collections because we are trying to pay our bills.

So to make things right and get out of collections my husband pays 3 months worth of payments when he only had to pay 2 months just to be safe. But here is where it gets ugly...the person on the phone in Chillicothe Ohio says, "it is not our responsibility (meaning Adena) to send you a bill every month, and if you don't pay your bill monthly we will turn you over to collections again!"

HOW the heck are you to pay a bill if you don't receive one and know how much you are paying and how much you have paid? My husband was fuming mad! This person was threatening us!
So to stop this from ever happening again and the bill we mailed getting "lost" we now call every month and pay the bill over the phone, but guess what that doesn't work either.

Because, just a month later after going through this and paying the 150 dollars and being threatened by this "billing department person" who in my opinion is nothing but a con-artist in a cubical we find out when we call the next month to pay our bill, (that we actually got a bill in the mail for dispite what that person said about not having to send bills out) that the 150 dollars we paid was in the computer system but was never credited to our account!!!!!! So this new billing department person we're dealing with has to not only add the 150 dollars to our account that should have been added a month ago but also add on our new payment for the current month!

Luckily since then we have been getting regular bills, but now we are getting double billed and receiving bills we should not have even been billed for because Adena messed up AGAIN! This is the worst hospital billing department EVER!

one day last month while fighting to get a bill removed that I wasn't suppose to have been billed I for asked the "billing department" person on the phone, "I have a question, why is it that when I get a bill it comes from Michigan, and when I mail the bill out it goes to Cleveland Ohio, but when I have to talk to someone about the bill that came from Michigan I have to call and talk to someone in Chillicothe Ohio?" The lady on the phone says, "ma'am I honestly don't know."

Ok, my question is how do these people get this job? Because you have to have a college education to do this job, yet every time I have to deal with someone in that dept. they don't know what is going on or why things are happening to me and my bills? This has not been a year fight, I have been fighting with this hospital for over 4 years now! 4 YEARS!!!! And still people (and different people) in that department don't know what is going on! Holy Crap I think it's time to get a new billing department!

This is why I refuse to go back to this hospital. The last time I was actually admitted to this hospital and stayed there, they tried to give me the wrong medication!!!! THANK GOD I have worked in the nursing field because if I hadn't looked in that pill cup and questioned what was in it, I could have possibly died. When I found out what one of meds were that they were trying to give me I said, I'm not suppose to be taking that I don't have that wrong with me. And immediately I said I wanted patient advocate in my room NOWWWWWWW!

Come to find out that not only were they trying to give me the wrong meds but nurses had been signing off that they had been giving me a medicine that they HADN'T! Not only did the hospitals pharmacy mess up but the nurses were also negligent. And because of this I got one out of the 3 days I was in that hospital written off because if they had been giving me the right meds I would have been out of the hospital sooner. Oh and while all this was going on there was a fire that broke out on the floor above me and that floor had to be evacuated. Luckily I haven't had to stay in a hospital since then and that was the beginning of 2008.

To anyone that stays in a hospital be proactive with your care! I can never emphasis this enough. Never take things at face value, if you are brought a pill to take, ask what it is for and why they are giving it to you. Because asking just might save your life! Remember nurses and doctors are human and humans make mistakes. So don't play Russian roulette with your life. And if you feel you or a family member isn't being treated properly at a hospital or nursing/rehab center you have the right to ask for PATIENT ADVOCATE! You have rights so use them.

Ok I'm done venting about hospitals now....

To get back on track I'm doing better after 5 days of suffering through horrible abdomen pains and sleepless nights and maxing out my pain meds.

I'm still not completely better, and wont really ever be but at least I'm getting back to my "normal" self. Still taking all my meds, but luckily not any pain meds.

It's always a good day when I'm not in severe pain, no matter what I may be dealing with.

Sunday, October 16, 2011

Missing The Jeremy Camp Concert NoThanks To Crohn's


I wanted to share something uplifting because, I'm not feeling so "uplifted". Yesterday I began having severe abdominal pains. Nothing helped, and they were so bad that I maxed out on my pain meds. I suffered through the night and today is not any better.

I didn't get to sleep until after 4 a.m. this morning, then I woke up at 7 a.m. in pain, then at 10 a.m. and was awake crying and screaming out until Noon until my pain meds took effect. I slept for 2 hours and woke up at 2 p.m. in more pain, so I thought I would try and write.

Today I've been on a liquid diet only Ensure and water to drink. My husband and I believe where they filled me with air from the upper endoscopy it's has given me very bad gas and to be frank, I have not stopped farting ever since the upper endoscopy, and the only time I feel a little relief from the pain is when I fart. But now after having solid bowel movements for weeks and doing good, I'm starting to have diarrhea again on top of all this going on.

Welcome to another day of a life with Crohn's.

Tonight I was suppose to go to see Jeremy Camp (He's a Christian Rock Artist) at a church in Grove City Ohio. My good friends Dawn and Gary got Jeremy and I tickets nearly 3 months ago as a Birthday present for Jeremy. This was before my diagnosis and everything, and they and us even thought by this time I would be better and able to go to the concert.

Jeremy Camp is one of my favorite Christian Artists his music is biblical and inspiring. Below is my favorite song of his and it is also one of the songs that has helped me through over the past 4 years dealing with what we now know is Crohn's Disease.

I have seen Jeremy Camp in concert before I got sick. However, I'm upset that I can't go this time because I've not been able to go do anything like this in a long time, but I have to accept the things I cannot control and accept the things that i can. I may not be able to see Jeremy Camp Live tonight but i can put in any one of his CD's and listen to all his music.

Today I'm thankful for that, even though right now it's so hard to willingly find something to be thankful for right now. I'm thankful for Jeremy Camp's music and the technology so I can listen to these inspiring songs to help me as I lay in my bed sick and just trying to make it through today.

Because "even when I don't see, I still believe"

Friday, October 14, 2011

Upper Endoscopy And A Good Gag Reflex


ABOVE PIC IS OF THE DIAGNOSIS FROM THE
UPPER ENDOSCOPY DONE TODAY
(Click To Enlarge To Read)

As you can read from the image above, there are more things wrong with me due to the Crohn's Disease. Now I have damage to my esophagus because of the acid and bile build up in my stomach, along with vomiting 1-2 times a week over the course of 6-7 yrs.

The good side to this is the Dr. was able to see that the inflammation in my small intestine had gone down quite a bit from the Crohn's Medication I have been taking, and he was finally able to take a biopsy of it.

However, the Upper Endoscopy didn't quite go as planned. During the procedure, they didn't give me enough medicine to sedate me and my body woke up and I began choking on the tube/scope in my throat. I could feel myself choking and trying to throw up but I couldn't get fully awake. I honestly thought for a few seconds before they quickly shot me with a double dose of sedatives and totally knocked me out, that I was going to choke to death. I couldn't breath and was trying to gasp for air but the scope was in my throat.

The only thing I heard someone say clearly was, "she has a very strong gag reflex" then I was out and the next thing I remember was being told that I was back in my room and needed to wake up and drink something.

Yeah right! It took me over half an hour to be able to open my eyes completely and sit up on the side of the bed. I had never been that knocked out except for when I had surgery, It took me quite a while to even be able to get back into my regular clothes.

Jeremy took a before and after pic of me. The after pic I have no recollection of him telling me he was going to do it, even though he says he did. Looking at them now that I'm awake I laugh at myself. Because honestly what else can you do? After the procedure and I was starting to wake up I was seeing little children or midgets (not sure which) running in a field and I at one point thought I was some where else other than where I really was. I saw glitter falling from the ceiling (again) for some reason I always see glitter falling when I get shot up with these sedatives or pain meds. And pictures flashing fast before my eyes like I was looking through a photo album or slideshow on a computer screen. WEIRD!

So I made it through another day, a little doped up still in the head, but at least we have more answers and within 10 days the biopsies will come back and we'll have an official diagnosis as to what else is going on with me.

Miranda Before Sedation

looking a little nervous but alert and ready to go

















Miranda After Sedation
Screwed The Heck Up! Wow!