Despite all the terrible things going on with my health some good things have happened over the past few weeks since I last posted.
The day after my last post Saturday Nov. 19th with the help from my Grandparents, Dad, his fiance' and my husband Jeremy. I was able to go to the event "One Night Without A Home" that was held in our town of Chillicothe Ohio to raise awareness about homelessness.
We had a booth for JMC Ministries and gave away lots of stuff about homelessness. I got to talk to many people about the "Smitten Mitten Expedition" where I make hats and scarves and fleece baby blankets with the help of my friend Dawn. I shared about my diagnosis with Crohn's and how through this disease I started making the hats and scarves to try and still make a difference in my community despite the fact I'm home and bed bound many days.
My husband Jeremy got to speak at the event about how he was homeless for 2 years in Houston Texas when he was just 19 yrs old. And through the help of many was able to make to where he is today.
We also held a raffle at our booth and raffled off 18 books about homelessness written by our good friend Dr. Jeremy Reynalds who is the founder of the largest family homeless shelter in New Mexico. We raised over $83.00 to help the local homeless shelter in Chillicothe Ohio.
The only sad thing about the entire event was that I really paid for it the next day. I got even more sick despite the weather being nice and was down sick with the chest cold for over a week and due to my immune system being so shot I'm still not over the cold and because I'm still on my antibiotic for the Cdiff I can't take anything to get rid of it.
I was suppose to go to my Gastro Dr. appointment the day before Thanksgiving day, but because I was so sick and I'm so prone to catching any virus that someone may have in an inclosed space like the dr.'s office my Doctor Cancelled my appointment to keep me safe and try to give me a chance to get better.
So, with that news we were able to breathe a little easier and I got to stay and bed and rest the hold day before thanksgiving. And Thanksgiving day even though I was still sick my Grandma told Jeremy to bring me over to have Thanksgiving with them since it was only going to be just her, grandpa, and my Dad there. The only thing that went good on Thanksgiving was the fact that everything I ate from the Turkey to the mashed potatoes and noodles did NOT mess up my Crohn's! I'm thankful I got one day to enjoy without abdominal pain.
But since the Gastro Dr. cancelled my appointment to allow me to get better, they rescheduled my appointment for Dec 23rd. As of right now I don't know what they are going to do other than talk about how I'm doing and see if they need to try something new to help my Crohn's get into remission faster.
As of today though I'm still fighting this cold and though it has gone out of my chest I still keep sneezing, coughing, achy and running a low grade fever nearly every night for a few hours. I can't take any antibiotic or stuff for it because I'm still on the antibiotic to get rid of the Cdiff until at least Friday. And I'm sure after that the Dr. will want to do another test to see if the Cdiff is gone or not. Not knowing which is causing it between the Cdiff and the Crohn's but I've been having severe abdominal pains over the past 3 days the other night Jeremy and I were literally up for over 24 hours because I was in so much pain and no amount of pain meds would help it. So by 8a.m. Tuesday Morning we were exhausted and Finally the abdominal and stomach pains eased up enough where I was able to sleep until 4p.m.
Some people are saying that I'm hurting because of my diet....Well I hate to them, but they are wrong. How can it be my diet when most days I'm living on Ensure drinks, and eating either boiled or grilled chicken, ramen noodles and toast and crackers because I can't hold anything else down? Even my family is starting to believe that it doesn't matter what I eat or not eat between the antibiotics reeking havoc on my stomach and intestines and the Crohn's Disease reeking havoc as well. I'm in a lose lose situation until the medications start to really work.
There are days like today I can't make it through on my own and I have to just pray and ask God to carry me through today and hope and pray tomorrow will be better.
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