Sunday, October 7, 2012
JMC Vlog Episode 35 Car Wrecks, Crohn's Disease, & Wedding Anniversary
Miranda gives an update on what has been happening since May. Miranda shares about her continued fight with Crohn's disease, surviving a very bad car wreck, and celebrating she and her husband's 5th wedding anniversary in the midst of all of this.
Link To Miranda's Blog Site "Miranda Writes"
http://www.mirandacwrites.blogspot.com
Link To JMC LIVE Wedding Anniversary Special
http://youtu.be/z3yG4r9VvuE
Friday, September 21, 2012
Happy 5 Year Anniversary Darling
Tomorrow Sept. 22nd I will be celebrating my 5 year wedding anniversary with my husband Jeremy. It is another milestone in our lives, every year we care together I count special because it's another year we survived this disease and have not allowed everything we face to tear us apart.
The stats on a couple like Jeremy and I are not good. 85% of all couples who deal with an incurable disease or Chronic Illness in their marriage end up divorced. The Disease takes it's toll on the marriage and it falls apart in most cases.
But only through faith in God and his unfailing strength and remembering the vows to made on our wedding day have Jeremy and I been able to survive these dark times we have and are facing in our life together.
On Sept. 5th 2012 another horrible event happened in our lives. While driving home from church that night we were in a very bad car accident. Jeremy was not injured other than a very badly bruised leg and chest from the seatbelt and the airbag. I had to be taken in an ambulance to the hospital because it was feared I may have a broken left wrist and injured my neck. By the Grace of God I only had a severely sprained wrist and a contusion to my neck where the seat belt slammed into it.
The people in the other vehicle 2 of them were taken to the hospital and treated while a 3rd was life flighted to another hospital for her injuries. Luckily and thanks to God watching over us all, everyone will be ok and recover from their injuries.
But that night I was not sure right when the accident happened if this was to be the end of my life, Jeremy's life, or both our lives together.
But I am still here and so is Jeremy and we are celebrating another anniversary. Clearly God is not done with me, and he has work for me to do. I'm just not sure what at times.
Yesterday Sept. 20th was another memorable day.. Because I started on Humira for my Crohn's Disease. This medication is something I thought I would never have to be on in my entire life.
Humira is an injection shot I have to give myself every other week to try and suppress my immune system so that it doesn't attack my intestines and keeps the Crohn's disease in remission.
A nurse had to come out to our house and show me how to do everything. This made Jeremy extremely nervous and he didn't take this very well. Not just that but knowing the possible side effects of this medication is enough to scare you to death. And it took it's toll on him.
Jeremy just feels so helpless when it comes to this disease, because he's a problem solver and he just can't solve the problem of me and at times it makes him break down seeing me in so much pain. Seeing me having to stab needles into my body to inject medicine that "might" help, being poked and prodded, having tests after tests run that have no good results over the past 4 years. It's a lot for someone to deal with and I myself don't deal with it very well at times either.
And Jeremy is not the only one that feels like this, it has taken such a toll on my family and when my Grandma found out that I was going to be put on Humira she was so scared, thinking of me giving myself a shot and not knowing how my body would react to the medicine and wondering if I would end up in the hospital from some very bad reaction. But after I took her my training kit over and showed her it and she looked through the information she calmed down some. But still knowing that a loved one is that sick they have to be on this intense of a medication is more than they can bare at times, I can see it in their eyes.
Jeremy tells me sometimes, he feels like he's losing me. Because I'm not the Miranda he married 5 years ago, and met 6 years ago. Back then I was healthy and full of life going here and there. Miss optimistic Miss Independent. No Fear and living life to the fullest.
That person doesn't exist anymore right now. I am Miss Dependent upon my husband and family to help me. I am at times full of Fear of the unknown, and I am NOT able to live life to the fullest as I wish I could. I am at times just existing in this world without knowing why, other than God has some plan for me and there is a reason for my existence on this earth.
My Greatest joy in-spite of everything is that when I was healthy and when I have a good day without pain and have some energy, I did and do LIVE!! I have amazing memories I think back on daily when I am stuck in my bed sick. I have known the love of a wonderful man and have made it 5 years with him and hope to make it another 5 years, 10 year 20 years and even longer with him for as long as God sees fit to have me on this earth.
This month and the past 4 years have been an uphill battle but we just have to keep fighting. Because I have faith that my suffering is not in vain. For that is what the Bible tells us, and I think of Jesus and his suffering how much more pain and anguish he went through than what I am going through now. And HIS Suffering was not in vain, for he saved the whole world from Hell, so surely if God would not allow his only son to suffer in vain then we surely will not either.
The stats on a couple like Jeremy and I are not good. 85% of all couples who deal with an incurable disease or Chronic Illness in their marriage end up divorced. The Disease takes it's toll on the marriage and it falls apart in most cases.
But only through faith in God and his unfailing strength and remembering the vows to made on our wedding day have Jeremy and I been able to survive these dark times we have and are facing in our life together.
On Sept. 5th 2012 another horrible event happened in our lives. While driving home from church that night we were in a very bad car accident. Jeremy was not injured other than a very badly bruised leg and chest from the seatbelt and the airbag. I had to be taken in an ambulance to the hospital because it was feared I may have a broken left wrist and injured my neck. By the Grace of God I only had a severely sprained wrist and a contusion to my neck where the seat belt slammed into it.
The people in the other vehicle 2 of them were taken to the hospital and treated while a 3rd was life flighted to another hospital for her injuries. Luckily and thanks to God watching over us all, everyone will be ok and recover from their injuries.
But that night I was not sure right when the accident happened if this was to be the end of my life, Jeremy's life, or both our lives together.
But I am still here and so is Jeremy and we are celebrating another anniversary. Clearly God is not done with me, and he has work for me to do. I'm just not sure what at times.
Yesterday Sept. 20th was another memorable day.. Because I started on Humira for my Crohn's Disease. This medication is something I thought I would never have to be on in my entire life.
Humira is an injection shot I have to give myself every other week to try and suppress my immune system so that it doesn't attack my intestines and keeps the Crohn's disease in remission.
A nurse had to come out to our house and show me how to do everything. This made Jeremy extremely nervous and he didn't take this very well. Not just that but knowing the possible side effects of this medication is enough to scare you to death. And it took it's toll on him.
Jeremy just feels so helpless when it comes to this disease, because he's a problem solver and he just can't solve the problem of me and at times it makes him break down seeing me in so much pain. Seeing me having to stab needles into my body to inject medicine that "might" help, being poked and prodded, having tests after tests run that have no good results over the past 4 years. It's a lot for someone to deal with and I myself don't deal with it very well at times either.
And Jeremy is not the only one that feels like this, it has taken such a toll on my family and when my Grandma found out that I was going to be put on Humira she was so scared, thinking of me giving myself a shot and not knowing how my body would react to the medicine and wondering if I would end up in the hospital from some very bad reaction. But after I took her my training kit over and showed her it and she looked through the information she calmed down some. But still knowing that a loved one is that sick they have to be on this intense of a medication is more than they can bare at times, I can see it in their eyes.
Jeremy tells me sometimes, he feels like he's losing me. Because I'm not the Miranda he married 5 years ago, and met 6 years ago. Back then I was healthy and full of life going here and there. Miss optimistic Miss Independent. No Fear and living life to the fullest.
That person doesn't exist anymore right now. I am Miss Dependent upon my husband and family to help me. I am at times full of Fear of the unknown, and I am NOT able to live life to the fullest as I wish I could. I am at times just existing in this world without knowing why, other than God has some plan for me and there is a reason for my existence on this earth.
My Greatest joy in-spite of everything is that when I was healthy and when I have a good day without pain and have some energy, I did and do LIVE!! I have amazing memories I think back on daily when I am stuck in my bed sick. I have known the love of a wonderful man and have made it 5 years with him and hope to make it another 5 years, 10 year 20 years and even longer with him for as long as God sees fit to have me on this earth.
This month and the past 4 years have been an uphill battle but we just have to keep fighting. Because I have faith that my suffering is not in vain. For that is what the Bible tells us, and I think of Jesus and his suffering how much more pain and anguish he went through than what I am going through now. And HIS Suffering was not in vain, for he saved the whole world from Hell, so surely if God would not allow his only son to suffer in vain then we surely will not either.
Thursday, July 19, 2012
My Knight In Shining Armor
My Knight In Shining Armor
By Miranda Caverley
For My husband Jeremy
Pain envelopes me.
Tears fall from my eyes,
Screams escape my mouth
as once again the diseases attack my body.
Hands try to comfort and heal
that which there is no cure for.
As the pain continues to swallow me up
like quicksand.
My knight in shining armor stands watch
Trying to fight the demons that attack me.
He wipes a tear from his eye
for he knows he is fighting a losing battle.
But yet he stands watch over me.
His love for me unfailing
and forever faithful until the end.
My knight is my heart helping me to keep going
even as I fight against the will to give up and die.
My heart keeps me alive and to continue to fight.
Fight the diseases and demons every day.
His love keeps me.....
Friday, July 13, 2012
Meeting My New Gastro Doctor At OSU Hospital
This week has been nothing but being sick and going to doctor appointments and having more tests done.
On Tuesday July 10, 2012 my good friend Dawn took me to my first appointment to see my new Gastro Doctor at Ohio State University Hospital in Columbus. I was so sick the entire time and so weak Dawn had to push me in a wheelchair through the hospital because I couldn't walk very far.
I see my new doctor and he looks and listens to my stomach and intestines. Puts me on a higher dose of the Crohn's medicine I'm already on, has about 15 vials of blood drawn to test me for anything and everything he can think of. Then Schedules me to have a CT Scan of my abdomen. And has me sign papers to have all my records and test results from my last Gastro doctor released.
My friend Dawn is so much like a Mom to me, and she has so much love and compassion for what I'm going through, Because both of her children who are around my age have been diagnosed and fighting Ulcertive Colitis for some years now which is like Crohn's Disease.
I thank God for Dawn and her husband Gary, I couldn't ask for better friends and spiritual parents.
Now lets go to today...
Luckily my appointment for the CT Scan today as in the afternoon so Jeremy despite me being sick all night did get enough sleep to make the over hour drive back to OSU hospital. I wasn't as sick as I was on Tuesday, but that all quickly changed when they had me start drinking the barium for the CT Scan. I told the woman I get sick every time because they make me fast for 6 hours, no water or food. So I can't take my medicine to help my stomach.
The moment that stuff hit my stomach, I was sick. They wanted me to drink 2 full bottles of that stuff, I told them they'd be lucky that I got 1 down me. I got 1 1/2 bottles down and started throwing back up. They weren't happy that I only drank that much and started saying that they won't get a good enough reading. But hey what am I suppose to do when they won't let me take my medicine.
So they went ahead with the test any way, and I was so sick they gave me a barf bag and then the guy doing the test says, "maybe your doctor should have you on medicine to keep you from being nausea's and vomiting"
I told him, "I'm already on medicine for that, but when you guys tell me I have to fast for at least 6 hours no food, water nothing. I can't take my medicine, so I'm gonna be sick"
Needless to say the guy shut his mouth after that and trying to act like he knew all the answers to my problems.
Immediately after the test was over and they told me I could go, I wen to the bathroom and threw up. Then made my way back to the waiting room where I had crackers, water and of course my medicine waiting for me to take.
The crackers, water and medicine helped some but it wasn't until I got a meal in me that my stomach started to calm down.
On our way back from Columbus when I have to go to the hospital, Jeremy and I always treat ourselves to a nice meal at Bob Evans restaurant in South Bloomfield. It's now become our little tradition, and at times it's the only nice thing we get to do the whole day when we've had to be at the hospital. It's so worth the money spent when we get to have some time together to just relax and eat a good meal, even if it does make me sick hour later.
So now we play the waiting game, waiting for the test results to come back, and waiting to see what this new Gastro doctor will do to help me. When I find out the results I'll let you know.
Until then, just gotta keep focused on making it through today and hope tomorrow will be better.
On Tuesday July 10, 2012 my good friend Dawn took me to my first appointment to see my new Gastro Doctor at Ohio State University Hospital in Columbus. I was so sick the entire time and so weak Dawn had to push me in a wheelchair through the hospital because I couldn't walk very far.
I see my new doctor and he looks and listens to my stomach and intestines. Puts me on a higher dose of the Crohn's medicine I'm already on, has about 15 vials of blood drawn to test me for anything and everything he can think of. Then Schedules me to have a CT Scan of my abdomen. And has me sign papers to have all my records and test results from my last Gastro doctor released.
My friend Dawn is so much like a Mom to me, and she has so much love and compassion for what I'm going through, Because both of her children who are around my age have been diagnosed and fighting Ulcertive Colitis for some years now which is like Crohn's Disease.
I thank God for Dawn and her husband Gary, I couldn't ask for better friends and spiritual parents.
Now lets go to today...
Luckily my appointment for the CT Scan today as in the afternoon so Jeremy despite me being sick all night did get enough sleep to make the over hour drive back to OSU hospital. I wasn't as sick as I was on Tuesday, but that all quickly changed when they had me start drinking the barium for the CT Scan. I told the woman I get sick every time because they make me fast for 6 hours, no water or food. So I can't take my medicine to help my stomach.
The moment that stuff hit my stomach, I was sick. They wanted me to drink 2 full bottles of that stuff, I told them they'd be lucky that I got 1 down me. I got 1 1/2 bottles down and started throwing back up. They weren't happy that I only drank that much and started saying that they won't get a good enough reading. But hey what am I suppose to do when they won't let me take my medicine.
So they went ahead with the test any way, and I was so sick they gave me a barf bag and then the guy doing the test says, "maybe your doctor should have you on medicine to keep you from being nausea's and vomiting"
I told him, "I'm already on medicine for that, but when you guys tell me I have to fast for at least 6 hours no food, water nothing. I can't take my medicine, so I'm gonna be sick"
Needless to say the guy shut his mouth after that and trying to act like he knew all the answers to my problems.
Immediately after the test was over and they told me I could go, I wen to the bathroom and threw up. Then made my way back to the waiting room where I had crackers, water and of course my medicine waiting for me to take.
The crackers, water and medicine helped some but it wasn't until I got a meal in me that my stomach started to calm down.
On our way back from Columbus when I have to go to the hospital, Jeremy and I always treat ourselves to a nice meal at Bob Evans restaurant in South Bloomfield. It's now become our little tradition, and at times it's the only nice thing we get to do the whole day when we've had to be at the hospital. It's so worth the money spent when we get to have some time together to just relax and eat a good meal, even if it does make me sick hour later.
So now we play the waiting game, waiting for the test results to come back, and waiting to see what this new Gastro doctor will do to help me. When I find out the results I'll let you know.
Until then, just gotta keep focused on making it through today and hope tomorrow will be better.
Friday, June 22, 2012
College Degrees, STAPH Infection, and Crohn's
On June 8, 2012 my husband graduated with his Associates Degree From College. This week he began his classes for his Bachelor's Degree In Communications. I could not be more proud of Jeremy.
The only down side, is that I am still sick and fighting day to day to deal with the diseases that attack my body.
At the End of May Beginning of June I had a Knot show up on one of my breasts. Immediately I called the doctor because in just a day and a half it grew to the size of a quarter. The doctor took one look at it and said, "It's another STAPH Infection."
I've been fighting with STAPH Infections and MRSA ever since I got Crohn's Disease. After this current round of antibiotics I was put on to fight off the STAPH Infection. I have now in just over 2 years, been on antibiotics 9 times to fight these horrible sores. The other bad thing about these sores is, every time I get one on my body when it goes away, it leaves a scar that looks like a small bruise.
I have numerous scars from these sores and sadly I am stuck with them for the rest of my life, and if I continue to get STAPH Infections I will just keep getting more scars.
For a few weeks after I was off the antibiotics I had been having more good days than bad. I even got to go and visit the Chillicothe Bikers Church one Sunday and a Wednesday for their bible study. And even got to attend their Hog Roast for a couple of hours Last Saturday.
But during the Hog Roast I began getting sick, and had to leave after 2 hours of being there. Ever since last Saturday I have continued to deteriorate . To the point that for 2 days this week, I have been bed ridden, and have had to go back to taking my anti vomiting medicine and pain pills to just function some what normally. The other day while Jeremy was in class I was alone and working in our bedroom to put laundry away. Suddenly I had a pain in my intestines hit me and I nearly collapsed on the floor. I grabbed the phone, called my grandma and had her to stay with me on the phone until the pain and diarrhea passed. I hadn't had that happen in nearly 4 months, and to be alone and nearly collapsed is one of the scariest things.
Jeremy has not had much sleep in 2 days from staying up late and trying to comfort me and help me as best he can.
I'm praying that the Crohn's is not coming out of remission already, because I don't want to be bed ridden again for God knows how long.
I go back to my family doctor next Friday, and I have less than a month until I see my new Gastro Doctor at OSU.
Depression has been fighting me very hard lately, and I'm trying desperately to stay positive but there are days I just break down and cry out to God to help me make it through today. Because maybe tomorrow will be better.
The only down side, is that I am still sick and fighting day to day to deal with the diseases that attack my body.
At the End of May Beginning of June I had a Knot show up on one of my breasts. Immediately I called the doctor because in just a day and a half it grew to the size of a quarter. The doctor took one look at it and said, "It's another STAPH Infection."
I've been fighting with STAPH Infections and MRSA ever since I got Crohn's Disease. After this current round of antibiotics I was put on to fight off the STAPH Infection. I have now in just over 2 years, been on antibiotics 9 times to fight these horrible sores. The other bad thing about these sores is, every time I get one on my body when it goes away, it leaves a scar that looks like a small bruise.
I have numerous scars from these sores and sadly I am stuck with them for the rest of my life, and if I continue to get STAPH Infections I will just keep getting more scars.
For a few weeks after I was off the antibiotics I had been having more good days than bad. I even got to go and visit the Chillicothe Bikers Church one Sunday and a Wednesday for their bible study. And even got to attend their Hog Roast for a couple of hours Last Saturday.
But during the Hog Roast I began getting sick, and had to leave after 2 hours of being there. Ever since last Saturday I have continued to deteriorate . To the point that for 2 days this week, I have been bed ridden, and have had to go back to taking my anti vomiting medicine and pain pills to just function some what normally. The other day while Jeremy was in class I was alone and working in our bedroom to put laundry away. Suddenly I had a pain in my intestines hit me and I nearly collapsed on the floor. I grabbed the phone, called my grandma and had her to stay with me on the phone until the pain and diarrhea passed. I hadn't had that happen in nearly 4 months, and to be alone and nearly collapsed is one of the scariest things.
Jeremy has not had much sleep in 2 days from staying up late and trying to comfort me and help me as best he can.
I'm praying that the Crohn's is not coming out of remission already, because I don't want to be bed ridden again for God knows how long.
I go back to my family doctor next Friday, and I have less than a month until I see my new Gastro Doctor at OSU.
Depression has been fighting me very hard lately, and I'm trying desperately to stay positive but there are days I just break down and cry out to God to help me make it through today. Because maybe tomorrow will be better.
Thursday, May 31, 2012
May 2012 Update: Update From Doctors Appointment
Miranda gives an update on the latest doctor appointment
Saturday, May 26, 2012
Updates From April 2012: Heart Monitors And Drums
April 13, 2012 Miranda gives us an update on her heart monitor and the various testing to be done. Easter highlights and other news.
April 22,2012 Miranda gives an update on her tests she just had.
April 28, 2012 Miranda Caverley of JMC Ministries playing drums at Crohn's/Colitis Awareness Event In Chillicothe Ohio. Miranda has Crohn's Disease and due to her illness has been unable to play drums and perform publicly in over 2 years. It was a dream come true to be able to play for an event especially an event for the disease that she has.
Miranda talks about the Crohn's & Colitis Team Challenge Event in Chillicothe, OH. How she got to make a dream come true again & play drums!
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