I have finally forced myself to write a new blog and update on my condition and what has been happing since my last blog post when I was prepping to go into the hospital for my Upper GI and Colonoscopy.
March:
Had to stay 2 days in OSU hospital to prep and have my Upper GI and Colonoscopy. Was one of the worst hospital stays ever because I was so violently sick trying to drink that horrible stuff to clean me out and prep for the tests. Had to be given shots of pain meds and nausea meds every 4 hours. My blood pressure and pulse got out of the control and they had to hurry and get me blood pressure meds in me to get it regulated again.
Finally got through the prep for the tests and the next day I had my procedures done.
The Results: Crohn's is not as bad as it was on my first colonoscopy almost 2 years ago they were actually able to finish this one when before I was so inflamed from the Crohn's being out of control that they couldn't even get the scope into my small intestine. However, the Crohn's is NOT in remission and is active where my small intestine and large intestine meet. Also I have ulcers through out my intestines, and I also have internal hemorrhoids. So the Humira injections have helped a little but after 8 months of being on it there is no change and I am still running to the bathroom 6-10 times a day, diarrhea, vomiting, severe stomach and abdominal pain to the point at times I can't hardly walk or do anything but lie in bed until it passes. I'm still not able to eat much other than noodles, potatoes, carrots, breads, applesauce, chicken, fish and rice.
Also In March I had another Gastric Emptying Scan to see about the Gastroparesis diagnosis. The results showed that my stomach is slightly delayed at digesting my food, but not slow enough to officially diagnose me any longer with Gastroparesis, so that diagnosis has been removed and I am no longer on medication for Gastroparesis. It appears all problems with my stomach are caused due to acid reflux and Crohn's.
April:
In April I had the STAPH Sores Return on my body that I have been fighting for 4 years now. I went to a dermatologist and he says I have basically chronic STAPH infection and there is no cure for it. The only thing to do is try and keep me away from people who may be caring STAPH and exposing me to it. Use a extreme anti bacterial wash once a week when the sores are under control and not flared up for the rest of my life and when they are flared use it every day until they get back under control again. And also use prescription antibiotic topical skin creams to heal the sores.
So when I was diagnosed with this new chronic illness, I had to immediately go off my Humira injections to help my Crohn's disease for a month.
I was finally able to start them back up again just this past Saturday after 4 weeks of being off it.
Oh also I'm in a fight basically with my GI doctor because he is now even after doing the colonoscopy and endoscopy and there is the proof that the crohn's is NOT in remission and still out of control. He believes, "that you need to see a psychologist and get cousneling, for your pain." He is saying that all this pain and my symptoms are all in my head and that he doesn't understand why I'm in so much pain and still having such severe symptoms. UH maybe because I have ulcers in my intestines, and active Crohn's disease along with internal hemorrhoids. All of which would cause pain when Poop is grinding against them.
So when I go back to see him at the end of June, this may be my last visit with him and we may have to again look for a new GI doctor, because if he doesn't do a med change and try something else to try and get me into remission so I can have some kind of a life again. I'm done with him. I've been seeing him for over a year now and he's only done one med change and the Humira is not getting me into remission and I feel no different after 8 going on 9 months.
This is already my 3rd GI doctor in 4 years and it's really sad because this doctor specializes in Crohn's disease patients and is at what is suppose to be one of the best hospitals in the whole U.S.A So where do you go from here when you're already suppose to be seeing the best?
My 32nd birthday is a week from today and I don't even care at this point. I'm too sick to do anything to celebrate it. You really don't feel like celebrating your life when you have a incurable disease that has taken your life from you and now you have just been diagnosed with another incurable condition and will have to fight STAPH and possibly MRSA infections for the rest of your life, and if it gets too severe it could kill you with the way my immune system is so compromised if my body doesn't respond to the antibiotics.
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