After my last Gastro appointment on Dec. 23rd 2011 and the gastro dr. telling me yet again for the 2nd time since Sept. 2011 "I don't know what is wrong with you" he tells me yet again "I don't know what is wrong with you, but I don't think all your diarrhea, stomach and intestinal pains are from Crohns disease, and you need to go back to your family doctor and have him refer you to a gynecologist and possibly other specialists because I don't know what to do for you."
This gastro dr. has only been my dr. for 4 months and this is what he is telling me! I'm ready to find a New gastro doctor and NOW!
So, on Jan. 19, 2012 I go to my family doctor for a follow up from the what the gastro doctor told me to do. My family doctor didn't have any kind of paper work or any of the test results from what the Gastro Doctor did right before Christmas! My Family Doctor really didn't even know what was going on until I told him everything. His reply was, "we need to find you a new specialist, do you have any in mind."
My family doctor also believes all my symptoms ARE because of Crohns because my Crohns is NOT in remission. My family doctor then asked me, "so what is the gastro doctor doing for you right now?" I had to tell him NOTHING other than keeping me on medication for Crohns which doesn't seem to be helping. He was upset to say the least.
My last CT Scan in December, showed I have an enlarged cyst on one of my ovaries, and this is what the Gastro doctor thinks is causing all my problems. However, my family doctor doesn't think so, but to be on the safe side, and to rule it out, my Family Doctor ordered a ultrasound of the cyst on January 31, 2012. He isn't referring me to a gynecologist right now because he thinks that would be jumping the gun before he would do any other tests to see if I even need to be referred to a gyno doctor.
Then my family doctor also ordered a blood test, to test me for ciliac disease because that sometimes goes hand in hand with Crohns and he wants to rule that out as well. And he ordered another stool culture because I'm showing signs of having Cdiff again....yuck!
I am desperately praying that I don't have either especially ciliac disease. I already have 2 diseases and I don't want to have to add a 3rd to my life, these 2 I already have is bad enough.
The good news I have to share is that after 20 days of being on the steroid predisone, I did NOT gain Any weight. However I did not lose any, praise God for that. I had never been so excited to get weighed at the doctors' office ever in my entire life.
Even after taking the predisone my days/weeks are still consisting of chronic pain (as my family doctor calls it) switching from diarrhea to constipation every other day, and still being very weak and some days bed ridden from pain and weakness. Yesterday however, was one of the best days I've had in over a month. I was able to do house cleaning through out the day by working about 10-15 minutes at a time, then sitting and resting for 20-30 minutes. Then getting back up and working 10-15 minutes again. It was a great feeling to be able to do that after so many weeks of Not, even if it did take me over 5 hours to do house work that use to take me 1-2 hours by myself. Jeremy did help me by sweeping, mopping the kitchen and doing the dishes because by the time I got everything else done I had no energy to finish the kitchen. I thank God for him and that I am blessed to have a husband who isn't afraid to do a little "woman's work". If he hadn't done that it just would not have gotten done, thank you Jeremy for helping me.
Now after getting the blood tests and stool culture done, we are playing the waiting game until we get the results and also playing the waiting game until I go and get my ultrasound on my cyst. Then another possible waiting game to get in to see the new gastro doctor once i get referred. I have to call my family doctor with the name of the gastro doctor I want to be referred to at the Ohio State University Gastro clinic and then he will get the ball rolling for me. I will be calling me Monday to tell him the name of the Gastro Doctor.
This past Monday, Tuesday, and Wednesday I went and spent those days with my Grandparents so that Jeremy could have a little break from taking care of me. But over those 2 nights I spent with them, my poor grandmother didn't get much sleep because I was so sick. The first night was the absolute worst. I didn't get to sleep until after 3a.m and was awake every 1-2 hours waking up in pain. Grandma kept getting up and checking on me every hour or so to make sure I was OK and also didn't go to bed until I did. the difference between Grandma taking care of me and Jeremy taking care of me, is that Grandma doesn't have to go to work or school, and can sleep as long as she wants. So she did get caught up on her rest and she said she enjoyed having me come over despite my health problems.
While I was Grandma and Poppy's I read the book "Heaven Is For Real" if you have never read this book it is a must. It is about a little boy's experience going to heaven. I read the book in less than 2 days it was so good.
So now I am back home for a few days before heading back to Grandma and Poppy's (weather permitting) to spend a couple days with them again. So that I won't be alone when Jeremy is in class in case something should happen with my health. This looks to me the norm for me at least for the winter quarter of college. I hate being away from my husband, but right now it is for the best until we can get my disease into remission and get me feeling better.
Sunday, January 22, 2012
Monday, January 2, 2012
Starting 2012 off With Prayer
Even though I'm bedridden and in a 8 out of 10 level of pain even with taking what little pain meds I am allowed to take now. I wanted to try to write an update myself, no matter how long it may take me.
The Gastro Dr. put me on Predisone after my appointment Dec. 23rd. I took 4 pills a day for 5 days and now have down graded to 3 pills a day for 5 days and then day after tomorrow will down grade to 1 pill a day for 5 days and then 1/2 a pill a day for 5 days and then go off the predisone. However, my Crohn's is not getting any better since my dr. visit and I'm an continually bed ridden and in so much pain I'm near collapsing when trying to walk and go to the bathroom.
Jeremy has been my night in shining armor through all this. Even going as far as sleeping on the floor for 4 nights so I could have our big bed to myself. But after seeing him lying on the floor for 4 nights and seeing as I am not getting better. I called my dad and asked him if we could borrow his spare twin bed for Jeremy just until I can get better where Jeremy and I can sleep in the same bed again.
My dad brought the bed over yesterday, he and Jeremy set the bed up right next to my bed so we won't be so far apart from each other. I keep telling him this is only a temporary thing until I can start to get better and then we will send the bed back to Dad's. But only being married 4 years to each other it is very hard for him and I not to be able to share the same bed we have shared with each other since we got married.
In the midst of all this my Grandma (my dad's mom) created an event a prayer event on facebook for me here is the link to it so you can learn more http://www.facebook.com/events/156251371145256/
My Grandma called Jeremy and told Jeremy that she feels led by God to start this Prayer Event and have as many people as we can possibly get to pray for me that God will heal me from Crohn's Disease, Gastroparesis, and the Stage 2 Damage to my Esophagus. So tomorrow Jan. 3rd 2012 starting at midnight tonight people who have accepted the invitations to pray for me and my healing will be through the entire day tomorrow. People as far East as South Korea and as Far West as California have accepted the invitations to pray. People from all over the world have written saying they are praying and fasting for me.
But as I write this post I just got a horrible phone call from Grandma who made the prayer event. She and my dad took my Grandpa/Poppy to the hospital with Chest pains. They did a CT Scan and blood work and found his pancreas is severely inflamed and infected. He right now is being admitted to the hospital to start Antibiotics and to have more tests run to see what is causing the infection. There are signs it may be his gallbladder and he has gall stones but they don't know. And he is at too high of a risk for this to get bad quickly to let him go home. So now my Grandma is spending the night at the hospital and they don't know how long he will be admitted to the hospital until they can get more tests run.
This is just too much.....I'm bedridden with this disease and my Poppy is in the hospital and I can't see him. And in a week it will be the 3 year anniversary of the Death of my other Grandpa my Papaw! DEAR GOD I CAN'T TAKE ANYMORE!!! My Family needs a miracle with this prayer event.
On a side note from this Jeremy has spent the entire day making phone calls to the Gastro Dr. on the update on my condition and how it is NOT improving at all. And made my follow up appointment with my Family Dr. as requested by the Gastro Dr. and we will be asking my family Dr. about whether or not he thinks we should try to get a home health Aid to come in and help take care of me until I can start to improve and get back to where I'm not bedridden and can do more for myself while Jeremy is away at School full time every week.
I must go now and make some phone calls to friends and family about my Poppy and get more people to pray for us. Because prayer is the only thing that will help my family and I.
The Gastro Dr. put me on Predisone after my appointment Dec. 23rd. I took 4 pills a day for 5 days and now have down graded to 3 pills a day for 5 days and then day after tomorrow will down grade to 1 pill a day for 5 days and then 1/2 a pill a day for 5 days and then go off the predisone. However, my Crohn's is not getting any better since my dr. visit and I'm an continually bed ridden and in so much pain I'm near collapsing when trying to walk and go to the bathroom.
Jeremy has been my night in shining armor through all this. Even going as far as sleeping on the floor for 4 nights so I could have our big bed to myself. But after seeing him lying on the floor for 4 nights and seeing as I am not getting better. I called my dad and asked him if we could borrow his spare twin bed for Jeremy just until I can get better where Jeremy and I can sleep in the same bed again.
My dad brought the bed over yesterday, he and Jeremy set the bed up right next to my bed so we won't be so far apart from each other. I keep telling him this is only a temporary thing until I can start to get better and then we will send the bed back to Dad's. But only being married 4 years to each other it is very hard for him and I not to be able to share the same bed we have shared with each other since we got married.
In the midst of all this my Grandma (my dad's mom) created an event a prayer event on facebook for me here is the link to it so you can learn more http://www.facebook.com/events/156251371145256/
My Grandma called Jeremy and told Jeremy that she feels led by God to start this Prayer Event and have as many people as we can possibly get to pray for me that God will heal me from Crohn's Disease, Gastroparesis, and the Stage 2 Damage to my Esophagus. So tomorrow Jan. 3rd 2012 starting at midnight tonight people who have accepted the invitations to pray for me and my healing will be through the entire day tomorrow. People as far East as South Korea and as Far West as California have accepted the invitations to pray. People from all over the world have written saying they are praying and fasting for me.
But as I write this post I just got a horrible phone call from Grandma who made the prayer event. She and my dad took my Grandpa/Poppy to the hospital with Chest pains. They did a CT Scan and blood work and found his pancreas is severely inflamed and infected. He right now is being admitted to the hospital to start Antibiotics and to have more tests run to see what is causing the infection. There are signs it may be his gallbladder and he has gall stones but they don't know. And he is at too high of a risk for this to get bad quickly to let him go home. So now my Grandma is spending the night at the hospital and they don't know how long he will be admitted to the hospital until they can get more tests run.
This is just too much.....I'm bedridden with this disease and my Poppy is in the hospital and I can't see him. And in a week it will be the 3 year anniversary of the Death of my other Grandpa my Papaw! DEAR GOD I CAN'T TAKE ANYMORE!!! My Family needs a miracle with this prayer event.
On a side note from this Jeremy has spent the entire day making phone calls to the Gastro Dr. on the update on my condition and how it is NOT improving at all. And made my follow up appointment with my Family Dr. as requested by the Gastro Dr. and we will be asking my family Dr. about whether or not he thinks we should try to get a home health Aid to come in and help take care of me until I can start to improve and get back to where I'm not bedridden and can do more for myself while Jeremy is away at School full time every week.
I must go now and make some phone calls to friends and family about my Poppy and get more people to pray for us. Because prayer is the only thing that will help my family and I.
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