CT Scan Results Are In

Yesterday I got the call about the results from the CT Scan I had done last Tuesday on my Guts.

The Bad News: I have wide spread permanent scar tissue damage through out my intestines and there is nothing the doctor can do about it.

The Good News: Right now there is no signs of active Crohn's disease that they can see.

The Other Bad News: They still don't know why I continue to have these "spells" where I get in extreme pain and collapse on the floor, or break out in a cold sweat and collapse on floor.  And 1-2 times a week I am completely bed ridden with extreme 8 out of 10 level of pain. 

What they aren't doing: The doctor has cancelled the smart pill camera procedure is not treating the crohn's at all until the crohn's goes out of remission.

What They Are Doing: The Doctor is going to try and put me on a new medication to try and ease my stomach issues A.K.A Irritable Bowel Syndrome to try and get the nausea, vomiting, stomach spasms, and the 4-8 bowel movements a day under control.

But this however is it, there is nothing else to be done for me at this point until the disease goes out of "remission" and my intestines get more and more damaged then there will be a med change to consider, so the doctor says. 

This is the healthiest I'm going to be and I may not be this healthy for long depending on when the disease decides to go active again and start to try and destroy me. 

Lots of tears being shed today.  But we have to realize that when the doctor says incurable there is going to come a point when there is really nothing else than can do other than send me home and have me come in for a check up every 6 months to a year. 

So, I am going to just keep doing what I have been. Taking things one day at a time and enjoying the good days I have and surviving the bad until the next good day comes along.

Pray for me friends because they are literally all I have left to lean on, and that God will heal me.

Ct scans, homemade noodles and Crohn's

Today my grandparent's cat lily is keeping me company as I fight through another bad day with the Crohn's. She is my buddy and nurse aid, or so she thinks. We are in bed watching old Christmas cartoons.

Last Tuesday I went to OSU east hospital and had a ct scan of my guts, so the doctor can see if I'm OK to have the smart pill camera procedure done in the next month or so.  Was the first time I did a ct scan and didn't start to throw up the barium drink. Thanks to my 5 stomach meds and the fact they didn't try to force me to try to drink 2 bottles of that yucky stuff after I told them I can only get down one bottle, and that this is how it has been for over 3 years. So thankful for understanding doctors and nurses.

Then Saturday evening my husband and I went out to dinner together at one of fav Chinese restaurants. Then we went to our fav music/movie store. It was a good time we had some laughs n good conversation. Jeremy is still trying to figure out whether he wants to get back together or not. But he is trying and I'm trying to keep talking daily to each other and do things together until he decided what he wants.

Then yesterday we got our first real winter snow storm and so I decided since we all were stuck inside, my grandma and I made homemade egg noodles. We made enough noodles to fill up 6 gallon freezer bags!! We made 6 batches of noodles, used 36 eggs and one and three fourths bags of flour!!! It was a lot of work but it was so much fun and now we have enough noodles to get us through all the holiday dinners!! This was my first time ever making noodles and what better day to do them on than the first snow of winter. It will be a special memory to cherish the rest of my life.

Also, 2 weeks ago I took all the hats and scarves I had made for this years smitten mitten expedition to the 2 homeless shelters I had chosen this year to donate to. And already I have gotten 2 big yarn donations and have begun making hats, scarves, and hand warmers for the 2015 smitten mitten expedition. Its amazing the out pouring of support I have received over the past 4 years from people donating yarn and money so I can help keep the homeless and needy in our area warm every winter. God has truly blessed this little ministry project. Even though I'm sick and disabled, I can still make a difference for the Lord and I still have a purpose and work to do for the Lord.