Since I last wrote nearly a Month ago, my health in some ways has improved, and in other ways it has not.
I'm still running to the bathroom 8-10 times a day on a regular basis, still struggling with vomiting at least 2 days a week. However, I do seem to be having a little more energy than I use to have. I'm spending more days out of bed than in bed. I'm not having extreme pain as often, but I'm still having pain nearly every day but it is manageable with my pain meds and also some new bath stuff and pain relieving lotions, and pain patches Jeremy bought me. But there are still days every now and then that the extreme pain hits and I'm in bed all day. But I'm so thankful that those days are much fewer and farther in between.
Yesterday was the first time in 2 years that I was able to a movie theater and see a movie. I did start to get fatigued and my body started to ache but Jeremy just put his arm around me held me and rubbed my shoulders and neck during the movie and it helped. We went and saw the Vow, it was honestly one of the most heart wrenching movies Jeremy and I have ever seen together....The reason? Because it was as if we were watching ourselves every emotion and struggle that couple went through to try and stay together and keep their marriage intact is exactly what Jeremy and I have been going through.
These diseases that have attacked my body have nearly broken the bonds of our relationship and marriage....But they have not succeeded and the only reason is God. Every day we fight to make it through another day, and when we do we just hold on to hope that the next day will be a little better than the day before. That is sometimes the only way we make it through.
On Valentines day Jeremy and I celebrated our 5 year anniversary of the day Jeremy flew from California to ohio to meet me for the first time after we had been talking online and the telephone for 3 months. That day 5 years ago was, magic. The moment I saw Jeremy standing there at the airport I walked up to him and kissed him for the very first time and felt his arms around me, I knew....I knew that this was the man I was going to spend the rest of my life with even though we had only just met face to face for the first time and we had only known each other for 3 months. He took 2 weeks of leave from the Coast Guard to spend with me, and by the end of those 2 weeks we knew we wanted to be married and spend our lives together. Just a few months later on Sept. 22, 2007 on the last day of summer Jeremy and I were married, and then just 12 days later I was in the hospital sick and that was when our journey with my health problems/diseases began.
Our life together has never been easy if it were I think I would worry myself to death that something was wrong. But here we are 5 years later still together and still in love, though very battled and bruised and at times broken. However, we are still together and we still love each other very much.
I go back to see my family doctor on Feb. 23rd for a follow up from the ultrasound test to check that ovarian cyst and also the doctor visit I had with a gynecologist. Everything shows that this cyst has NOTHING to do with all my symptoms of severe stomach/intestinal pains, vomiting, diarrhea and etc. the doctors and the tests shows that it is the crohns, and gastroparesis that is causing all my problems. And proved that my "former" gastro doctor didn't know what he was doing and that I clearly need a new doctor.
So already my family doctor's office has referred me to see a Gastro doctor at Ohio State University that specializes in Inflammatory bowel diseases. The bad news about this is that I can't get in to see this gastro doctor for 6 months!!! My appointment is in July! I'm praying this doctor is worth half a year wait and all this pain and suffering I'm going through. This will be the 3rd gastro doctor I will see in 4 years! I need a good doctor who is willing to take care of me and not shuffle me around and say "I don't know what is wrong with you" after I've paid them hundreds of dollars. I can't afford another doctor like that, and if I do have another doctor like that I think my husband is going to punch someone in the face.
My family Doctor has also taken over all medications that the "former" gastro doctor had prescribed so I won't have to deal with that gastro doctor again, until I see my new gastro doctor.
Luckily this winter here in Ohio has been very warm and mild so far. We have only had one real snow and we got 2 inches and in less than 48 hours it was all melted. I'm thankful for a mild winter because I need the lovely sunshine we have been getting. It is so depressing to be stuck inside for nearly 5 months with no sunshine.
I'm continuing to make the hats and scarves for the homeless project for next winter, and I'm also making some items to start my Miranda Dawn Creations. Right now I'm working on a crocheted summer tote bag! It's going to be so cute and I can't wait to get it done and share photos of it. I have a few more items to make for promotional and then I can start to take orders and make some money to help pay for my medications and doctor bills that seem endless at times. I'm not expecting to get rich but at least it will help a little to help pay for what I need.
I will write again after my appointment next week with my family Doctor.
