Miranda Writes

Wednesday, December 19, 2018

Theme From Mickey's Christmas Carol Performed By Miranda Caverley

Tuesday, June 5, 2018

JMC vlog episode 56 We moved to columbus ohio

https://youtu.be/UXImWvUl_Qw
Video update on Jeremy and I's move to Columbus Ohio on march 26, 2018

Thursday, August 24, 2017

Summer is almost over

This week children went back to school. There was an amazing solar eclipse on monday that made most everyone in the USA stop for a moment and stand in awe of what the heavens can do and God's amazing creation.
Aug. 4th jeremy turned 37. Aug. 22nd marked one month until our 10 year wedding anniversary and also the first day of fall.
I have not been able to go anywhere all summer except to my patio to enjoy the cool days we have had like today. Or to a store locally for a short ride and one date to a restaurant. Although the anemia is getting under control, there just anything to help the crohns disease and i have been swamped since the end of june with constant bad days, vomiting, fevers, near fainting spells (i nearly fell down our stairs earlier this month) fatigue and of course the never ending pain.
But everyday i keep fighting like i always do. I still get up and do what my body will let me. Keeping up on house cleaning and cooking meals daily takes every ounce of energy i have so it is no surprise i have no energy to go out for a date or a walk. But at least i have a clean house and thats ok with me.
I have felt pretty introverted this summer too. Which is not me, i haven't felt like talking to anyone but 3 people all summer on a regular basis. i have felt so bad i don't feel like talking. If you have ever been really really sick you know that you just don't feel like chatting. You just want to read or watch a movie or sleep until you are better.
We have had friends call or write asking if we can come visit or take a short road trip to see them. But jeremy has to explain that although we have the money and even the days off from his job to do these things, i am just too sick to travel even 30 minutes most days away from the house.
So to keep myself busy i have read some amazing books....here are just a few of the most recent
Blitz cat
Ready Player One
The zoo keepers wife
The dorothy must die book series which i have read 6 of the 7 books so far
Also continuing to crochet hats scarves and such for the homeless.....i hand those things out the first week of november and i have 2 big trash bags stuffed full already.
Playing music and hopefully will have my 70 yr old studio piano completely restored in another week or 2 so i can really enjoy playing it and making some new music videos.

Maybe when fall gets here in less than a month maybe i will have a few more good days and can take a day trip to columbus or some place exciting.

Wednesday, July 12, 2017

Long over due update

I haven't made an update since nearly the beginning of the year. And really it was because things had been going so bad.
I finally found it seems a GI doctor that will not abuse me and will listen to me and treat me like I'm a human being for once. Dr. Emlich is very upset with how I have been treated really my entire life since getting crohns disease and the abuse and neglect I have suffered over the past 10 years of my life. We found out from just simple blood tests that OSU could have easily done but refused to and also decided to tell me I was crazy. That I have been anemic/iron deficient for over a year at least and was on the verge of needing a blood transfusion. And also that I have had an infection in my stomach and intestines for over a year that was easily cured with a couple rounds of antibiotics.
Dr. Emlich agrees that I am at the end of what medicine can do for me since I am literally allergic to everything that is on the market for Crohns and basically we monitor me and treat what symptoms we can until I get bad enough for surgery in the coming years.
Dr. Emlich also said that looking at my inflammatory levels he thinks that I would never have been put on the chemo therapy treatments in the first place because I was NOT bad enough for that treatment yet. Yes I have moderate to severe crohns disease, but.....I also have severe irritable bowel disease as well and that is what is causing a lot of my problems not just the crohns. Which I knew as well.
So since the beginning of May I have been on Iron supplements to help my anemia which I can feel a huge difference and all my symptoms except the fatigue have gone away. I go in a couple days to have my level checked again to see if I am back into the normal range for iron level.
I have been able to do more than I have in a year and although I am sick still every day. I can handle being this sick because this is my normal.
Also on June 20, 2017 Jeremy and I decided to add a new member to our family. Miss Emily Tailor Caverley came into our lives. she is our tuxedo kitten that came from cousin jerri's home. and on july 10th she turned 3 months old she is such a joy and I am so happy I have her.
I also turned 36 yrs old on may 28th and I am happy to be able to get to grow another year older. Because sadly today I learned of another young crohns warrior who lost her battle with this disease. Every year God gives me is truly a blessing.
That is about all I have for now. Hopefully I will not wait so long to write another update.