Miranda's Music


Listen To Miranda's and her husband Jeremy's Music and Download Many of the songs they have recorded over the years

Friday, October 23, 2015

I Will Walk Through This Valley If You Want Me To

A long restless night for both Jeremy and I, trying to cope with the
bad news we got yesterday from the GI doctor. Jeremy and I cried off
and on all evening yesterday. He asks God "WHY?" "Why does MIranda have
to go through so much?" "Why don't you just take her home to heaven?"
"Why does Miranda have to suffer?"

I'm asking myself the same questions in my head. Why? So after a night of troubled sleep, tossing
and turning I think I know the answer to, Why?

All I can think, is that there are people God wants me to meet inside the hospital where
I am going to go for my Chemotherapy treatment and that I am to share
HIS love and hope with them. And the only way I can share the love and
hope of Jesus with these people is to go through this darkness and
sickness. I am desperately praying for purpose in the face of such
adversity, and that God IS working all things for my good through this
new treatment I am facing. 


Getting this news from my doctor was hard to take, but I'll be honest
what was harder was making all those phone calls to friends and family
to tell them this bad news. With every phone call, I felt like i was
ripping their hearts out. Watching my husband lie on the floor in our
living room sobbing and punching pillows because there is nothing else
to take his anger or frustration out on. These are the things that
breaks me. But today, I am just holding on to God's promises and know
He is with me every step of the way through this next step in my fight
against Crohn's Disease, and praying that this chemotherapy treatment
will NOT be in vain and that it will work and I will get back into
remission

Thursday, October 22, 2015

Miranda, The Doctor wants to start you on Chemotherapy Treatment, The Nurse Told Me On The Phone Today

After talking to my 3 doctors today, my GI doctor has decided to start me on Remicade which is chemotherapy to treat my crohn's disease. 

 3 weeks ago, I was diagnosed with Crohn's induced arthritis which means my immune system is not just attacking my guts, but also my joints and bones!! The only good thing about this is that it is not as severe as Rheumatoid arthritis but still causes damage to my joints and bones if left untreated.  The only treatment for this type of arthritis is to "aggressively treat the crohn's disease" as my rheumatologist told me.  The doctor thinks I have PERIPERAL ARTHRITIS here is a link to learn more about the different types of Crohn's Disease induced arthritis and about my particular arthritis
http://www.ccfa.org/resources/arthritis.html

Then in the past 7 days i have had every crohn's symptom i've ever had in the past suddenly hit me at the same time. I have had my mouth and tongue covered in ulcers (took 5 days to clear up and still fighting to clear up one on my bottom lip) never ending intestinal pain, diarrhea, severe fatigue, loss of appetite, pain ulcers/boils on the side of my stomach, and then last night a 10 minute dry heaving session trying to throw up everything that is in my stomach, that made me nearly pass out before it ended.

So after reviewing my symptoms and my new diagnosis the GI/Crohn's Specialist wants to see me next Tuesday Morning to start all the blood work and other tests for me to move forward starting Remicade/Chemotherapy.  Here is a link to read about Remicade and how it is used to treat Crohn's disease http://www.remicade.com/

Of Course my biggest fears of taking Chemo is 
1. will I start to lose my hair, because when I was on Humira my hair started falling out and I was forced to cut my hair very short to stop it from falling out and thinning anymore than it had. 
2. Will it make me really sick before it starts to work 
3. Will it even work, because Crohn's isn't like Cancer where doctors are certain it will work, with Crohn's it's literally "well lets try this and see if it will work" 
4. Contracting some kind of virus or infection and I can't fight it off and I die because my immune system is so depleted from the Chemo. 
5. Getting Cancer down the road due to taking the Chemo.  

So many fears and thoughts running through my head today, but I am gradually going to take these fears and hand them to God and say "you have to take these because I cannot handle them" and hope and pray for the best that the Chemo will work and I can get a bit of my life back again.  I am truly in God's hands at this point, I do not know what tomorrow holds, BUT I KNOW WHO HOLDS TOMORROW!  

Pray for me friends and family and also pray for my sister, mom, dad, step mom, and grandparents as they walk through this with me, and we get ready to put our feet to the fire again in this battle against this disease.   

Saturday, October 3, 2015

New Rheumatoligist and New Incurable Illness

Update on my Visit to the Rheumatologist: Yesterday I went to see my new doctor and the good news is, He knows my GI/Crohn's Disease specialist and he is knows a lot about Crohn's Disease and all the problems it can cause.

The Bad News, the doctor does not think I have fibromyalsia He thinks I have a form of arthritis through out my body that is specifically caused by the Crohn's Disease. Which means that my immune system has decided to start attacking my joints, muscles now along with attacking GI tract. The rheumatologist said "sadly once you get one auto-immune disease you will get more"
To diagnose this type of arthritis is very tough and much like diagnosing Fibromyalsia, so that means there isn't a specific test that can be done to say "hey you have this new incurable illness"
it's more like the rheumatologist has to look at my symptoms and my medical history and just make a diagnosis and see if treating my symptoms through this type of diagnosis will help ease my pain.
the other bad news, the main way to treat this type of arthritis is through biologic medications such as Humira injections (which i have already been on in the past) Remicade infusions (a type of Chemotherapy). When he told me this i got upset because when I was on Humira/biologics before, I was constantly sick, catching every little thing floating around in the air, no energy and down right sick feeling 24/7 not to mention it made me start to lose my hair and I had to cut it all off very short to stop it from falling out.

So the game plan, the doctor has ordered blood work to first rule out Rheumatoid Arthritis because he said there is a chance i could have RA and not just the crohn's induced arthritis, he said he is hoping along with me that it is NOT RA and agreed I have been through so much I don't need that form of Arthritis on top of Crohn's. If i had to choose between RA and this crohn's induced arthritis I would rather take the crohn's induced arthritis, because RA is the worst form of arthritis you can ever get. And blood work to try and confirm the crohn's induced arthritis.

After the results come back from my blood work then the doctor will call me to tell me the test results and to set up another appointment to work on a game plan for my official diagnosis. The doctor said he also is going to call my GI/ Crohn's specialist and talk to him about running tests on me to make sure my crohn's is still in remission in my guts. I pray they won't do a colonoscopy since i am not having diarrhea, not having pain all the time, not having blood in my stool, or having problems digesting food and holding food down. I pray that my doctor will just order blood work and a ct-scan on my guts to look for inflammation.

To say I didn't cry a little would be a lie, oh yes i teared up. Especially when the doctor looked at me and said before he ended my visit "your body has been through so much, I'm so sorry" because he knows there is no cure for what I have and it is not for certain even the medications will help ease my suffering. the doctor also said "you right Crohn's is not just a pooping disease, it affects every inch of your body"

I told him that I had 26 healthy years and I am so happy I got those 26 years. And i shared with him about getting sick just 12 days after Jeremy and I got married and how we have literally been fighting this disease our whole marriage. The look on his face when i told him this you could see his heart break for me. But I told him before i left that "i figure if i got to see a new doctor i just think of it as i get to make a new best friend" and he laughed and said that was a great way to look at it.

So there it is my friends. You would think that after continually being diagnosed with different health problems over the past 8 years it wouldn't bother me so much when I get a new diagnosis. But the reality is, you never do i think. It's like every time you hear the doctor say the words "incurable" or "disease" it never gets easier. It literally feels like a part of me has died and I have to take time to grieve that part of me I have lost and then pick myself up off the floor again, give this new illness/disease to God and say "here you handle it, I'm just too weak to carry this on my own" have a good cry and then move on and focus on the things I still have control over and can do with what life I have in the face of these illnesses.

The thing that made it oh so much easier to deal with, was having my sister and my grandmother there with me when I got the news. I have to brag about my sister Autumn for a moment. My sister has never had the chance to be there with me when I have gotten the "bad news" speech before and yesterday she decided to go back with me to the examination room instead of my grandma. Autumn got a front row seat of my life with Crohn's and she saw how it affects the doctors to not be able to cure/heal me but all they can say is "I'm so sorry" and "we will do what we can"

I was thinking last night, for those who have said they want to be a part of my journey with this disease in the past, first off you have to be ready to put your feet to fire because you are going to get burned and it is going to hurt and you WILL have scars, at times it may seem the fire will consume you because you feel so helpless to help me and stop my suffering, but that is why we must trust the Lord and just love and support me through this just as I have continued tp love and support my friends and family when they have faced health problems. I think about the story of shadrach meshach and abednego, they were in the midst of the fire and yet it did NOT consume them, it did NOT destroy them, for God was with them in the flames. And that is about the only way to describe what my little support group of friends and family go through with me. But at the end of the day I just keep saying to myself, this pain and suffering WILL end one day God will heal me either while I'm still on this earth or when I go to heaven, I'm a winner either way.

Tuesday, September 29, 2015

Upper Respiratory Infections and Auto Immune Diseases Do Not Mix Well

Yesterday for the first time in 5 years I had to go to Urgent Care because my body decided to catch an upper respiratory infection.  In just 8 hours I went from no infection in my chest to coughing my head off tasting infection and coughing nasty stuff up.  Thankfully my dad came and got me right a way yesterday morning and had me at the urgent care when they opened.  With my immune system being compromised due to the Crohn's Disease an infection can turn bad very quickly for me. 

Luckily since I went to the doctor right a way the nurse said I was not as bad as some patients they have been seeing with this, and that it was going around VERY bad.  I did not have a fever, but due to my pain level being high, my blood pressure was high and I was also having chest pains and with my medical history the doctor ran an EKG just as a precaution, and the results came back normal thankfully.  But he did order me some antibiotics and a cough suppressant.  This is the first time I've been on antibiotics since getting C-diff back in 2011 and so I'm doing everything I can to make sure I don't get C-diff again, so I'm drinking buttermilk and making sure I'm getting probiotics in my system.

This infection could not have come at a worse time, because on Friday I have to see the Rheumatologist to possibly be diagnosed with Fibromyalsia and I REALLY hope that i can have this infection over with by then.  I'm getting very little sleep waking up once every hour to cough stuff up out of my chest or I'm waking up with horrible night sweats that leave me cold and clammy.

Spending a lot of time drinking hot green tea with lemon and honey, and watching Netflix to pass the time especially right now being 4:45 a.m. and I can't sleep because I'm coughing too much again.  Hopefully the cough suppressant will kick in soon. But no matter what it's going to be a good day and I will get what house work I need to get done today, which is very little thankfully and rest and pray this infection passes quickly so I can get some rest.  


Tuesday, September 22, 2015

Happy 8th Wedding Anniversary Jeremy

Today 8 years ago I married the love of my life Jeremy Caverley.  To be honest I did not know if I would be celebrating 8 years of marriage with Jeremy due to the fact that last year on this day we were separated and I was living with my Grandparents crying myself to sleep this night 1 year ago praying God help me to know what to do to save my marriage. 

God worked a miracle, Jeremy and I have been back together for 6 months and we are doing very well.  The biggest hurdle we fight to get over everyday is the Crohn's Disease and now Fibromyalgia.  85% of marriages that go through an Incurable disease/Chronic illness do not make it.  The disease destroys the marriage, but I refuse to allow this disease anymore power over my life and especially my marriage.  I will fight to the death for my marriage because it is worth fighting for.  Jeremy and I have such an amazing love for each other we have survived so much to be together.

 The first obstacle we had to face was the fact our relationship was long distance with him being in northern California in the U.S Coast Guard and me here in Chillicothe Ohio.  But we made it and when he got out of the U.S. Coast Guard in July 2007, we drove cross country back to ohio and were married 2 months later.  But then just 12 days after we got married another obstacle was thrown at us, I was being admitted to the hospital and having emergency surgery to remove my gallbladder, which at that time we did not know was bad due to undiagnosed Crohn's Disease. And after the surgery I just never recovered and continued to stay sick and then gradually got sicker until I had a nervous break down and was labeled disabled and no longer able to hold down a job due to my ever growing health problems that no one could figure out. 

Fast forward to 4 years later on Sept. 7th 2011 just a couple weeks before our 4 year wedding anniversary I was officially diagnosed with Crohn's Disease after finding a good GI specialist. 

So our entire marriage has been a fight, every inch we have journeyed on this road in life together has been an epic battle majority of the time.  But we have prevailed this far and have no intentions on surrendering now.  You HAVE to have unconditional love for your spouse to go through this much,  because when the money has all run out, and the sex is no longer there due to health problems, and all you have is each others company that is when you truly find out if the person you are with truly loves you and that they are holding on to their wedding vows "through sickness and in health, til death do us part" that is what marriage is all about. 

Now not everything in our marriage has been storm clouds and rain.  There are days of beautiful Rainbows and clear blue skies.  Like this past weekend, we had the most fantastic Anniversary weekend that we have had in literally 4 years! It all started last Friday night with us going to Grandma and Poppy's for a bon fire.  My sister, dad, step mom, Grandma, Poppy and their dogs Maggie and sissy all gathered around Grandma's fire pit and roasted hot dogs and smores! We listened to some great old songs from mine and my sister's childhood and just had a wonderful time and I was NOT sick at all!!!

Then Saturday Jeremy and I went shopping, we stopped and got some fresh sushi for lunch and then we went to Kmart and each got a new pair of tennis shoes, I got 2 new pairs of pants and Jeremy got a new shirt.  We came back home for a little while so I could rest due to the fatigue hitting me from all the walking and then we went back out and went to a thrift store where I found some awesome books and a game.  then we went to Red Lobster for our BIG Anniversary dinner.  I had the Lobster feast meal, and oh my Lord was that the most amazing meal I have EVER had and it did NOT make me sick because sea food is the number 1 food I can eat any time without it hurting me.  I ate lobster, crab claws, and 2 types of shrimp! For dessert I had the most awesome carrot cake.  Jeremy had the Shrimp feast with shrimp cooked multiple ways and the most tasty fish I have ever tried, and for his dessert he had a choco chip cookie lava cake with a scoop of ice cream and choco sauce over it.  This meal was the most expensive meal I have ever had but it was so worth it and our waitress was so great we thanked her for making it so special.  Then we came home and literally crashed we both were so tired and then Sunday we literally slept the entire day and just cuddled and watched movies together.

Then today for our anniversary I made bbq ribs in the slow cooker with potato wedges and pumpkin cheese cake for dessert.  Jeremy told me those ribs were "DANG GOOD" and coming from a Texan I think I did pretty good for my first time ever making ribs.  They literally fell clean off the bones and were just right. 

So even though I am sick every day, including today I had hardly any sleep and have been in pain all evening to the point I had to take an emergency med.  We were still able to enjoy our anniversary and have a good time. 

I love you Jeremy, you are my heart.